Opsoclonus Myoclonus Syndrome

When Life Knocks the Wind Out of You

When Life Knocks the Wind Out of You

The Wheelchair was fitted for Hunter.

When Life Knocks the Wind Out of You.  This is what Hunter and I did today.  My heart simply aches.  I know this is for the best, but this is cruel and unusual punishment for me.  I guess I should be thankful, but right now, I’m just pissed.  There are so many things I’m pissed about.  The doctor(s) that misdiagnosed him, the loss of function, this stupid chair.

When Life Knocks the Wind Out of You

I guess one just moves on one breath at a time.  Somedays, I find it hard to breathe, though.  There are moments that I just sit and cry.  I simply do not know where to go from here.  Today, I just breathe.


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