Opsoclonus Myoclonus Syndrome

Reflecting on My Boy Walking Without Assistance

Life before:

Realize this is still pretty good compared to where he got before this treatment.

Reflecting on My Boy Walking Without Assistance

Reflecting on My Boy Walking Without Assistance after 3 intensive days of therapy.

Reflecting on My Boy Walking Without Assistance
He had to sit like this for hours while getting treatment. The treatment lasted 3 days.
Reflecting on My Boy Walking Without Assistance
In his wheelchair, touring downtown St. Augustine.
Reflecting on My Boy Walking Without Assistance
Vilano Beach, now dubbed, Hunter’s Beach. This was a still shot taken right before he stood up, alone.

I can’t even adequately verbalize my emotions.  Amazingly, I watched him stand up, by himself.  As a result, this was a moment I will never forget.  Then, because He is awesome, he RUNS to the ocean.  I’m so thankful that I caught that on my camera.

I got the best video and ironically, my camera attached a still shot.

Reflecting on My Boy Walking Without Assistance
The Moment!

Yes, it is framed, in my house.  Hunter, running to the ocean, carrying a stick.  Fearless, confident, and strong.  I’m amazed at God’s goodness.  We still have a long road to go.  Realistically, this is an unknown condition.  God has healed him…we are just waiting for the complete manifestation of that healing in his little body.

 

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