Day 3 of Retesting Hunter
Here is a recap of Day 3 of Retesting Hunter. As you might remember from yesterday’s post, lots of stuff happened. So many delays, a co-vid scare, and a tick on his penis are the highlights. Mix in being hungry, exhausted, and frustrated and there you have our first (and only) 2-day stay at the hospital. Let’s talk OMS, shall we?
Opsoclonus Myoclonus Syndrome (OMS) is difficult to diagnose. It is easier when a child has a paraneoplastic type or a neuroblastoma. Yet, being idiopathic is just a shot in the dark. Sadly, Vanderbilt has not really done us well, in our opinion.
Is it God Speaking?
The 1-day screw-up or the 2-day delay…was that God saying “stay home?” Nah, God hasn’t spoken to me in a while (in my opinion, not His). I press on, determined to get an answer with one of my many phone calls or messages.
We get there and most goes smoothly. Get to our room and things start falling into place. Nurses come in and do their thing. We get the IV going, tests begin running, questions being asked. You know, all the things. The co-vid test was a NIGHTMARE, but we got it done.
Is He Speaking Louder?
At 5 am, the neuro walks in to inform me that Hunter tested positive for co-vid. I told her that it had to be wrong because we have been nowhere. He has no symptoms. She said that it was positive and that we were being transferred to the co-vid unit.
They decided to retest him at 530 am. Fun, I know. Regardless of the outcome of that test, the aliens came in and whisked him down to the “red-headed stepchild” ward. I kid you not, that’s what people call it.
My mom called and said, “Brandi, can’t you just go home?” I told her no because we need these tests. That was my third warning and our second positive test.
In the Meantime
My family, back at home, are getting tested right and left. It’s a lot of people to get tested. Yet, once it was all said and done, everyone tested negative. It wasn’t surprising and I still questioned whether or not that the test was accurate.
Yet, we had an attentive resident who seemed to “see” me. We had a wonderful nurse who put Hunter at ease in every aspect. I decided that I would ignore all the warnings and second-guessing myself and we pressed on again.
Well, He didn’t just give me signs, feelings, phone calls, and such. This time, He just said, “leave.” The powers that be came in and said that there was nothing that they could do for 20 days. We should just go on home and come back.
That was loud and clear.
On Our Way Home
As I turned down the road to home, it began to pour down rain. My boy woke from a nap, it began to storm and the rays of the sun were shining down. I prayed for the Lord to give me a sign that all will be okay. I looked in my mirror and saw a HUGE double rainbow. It was glorious.
I had Hunter turn around and I told him the story of Noah and the ark. Hunter informed me that he knew all about the ark and the flood. We talked of salvation, the Holy Spirit, God’s promises, and such.
We turned on some praise and worship. Hunter was raising his hands and singing so loudly to each song. It warms my heart to know that he has been through so much and he still praises Jesus. I felt peace and warmth blow through my body.
BTW: Hunter and I tested on the 3rd and we are CO-VID FREE!
Maybe, God is moving.