Large Family Happenings, Medical Issues

Family Update February 2021

Family Update February 2021Family Update February 2021

Here is our BUSY Family Update February 2021.  For the shortest month of the year, it *feels* like this month lasted 428 years.  So.  Very.  Busy.  That meme cracks me up.  I’m not sure if it is my guardian angel, my mama, sister, or therapist.  Maybe all of them do that when I tell them something new.  Tis my life.

School

Still, Job Corp is not open.  I believe, to date, one has opened, so that is progress.  Right?  Noah got accepted into MSU and got his financial aid going.  He is figuring things out, so I don’t have to.  We’ve decided that Hunter will have his therapies at school.  Virtual therapy is STUPID.  It is seriously the dumbest thing ever.  He will only be at the school for an hour and a half.  Physical therapy, Occupational Therapy, and Speech will all be done weekly.  Maybe we will see some progress.

As for the boys, Jude is doing well.  He is learning to take his time.  The school gives him the ability to redo his assignments, but not tests or quizzes. He is learning to ask questions and study.  It has been a journey.  Daniel is struggling.  With FASD, it is hard.  Teachers “see” one thing (virtually), yet life is another.  We are going to take him 2x a week for tutoring.  After much back and forth, we adjusted his 504.  Praying that is going to help.

Happenings

There have been lots of birthdays this month.  Grayce, Hunter, Alyssa, Mimi, daddy, and several nephews have celebrated.  Also, we had a wedding shower for Alyssa on Hunter’s birthday.  That is one way to crunch it all in.  Originally, we had a separate day to do their share. Sadly, Alyssa got the flu or a stomach bug.  She was pretty pitiful.  We were not certain what she had, so we canceled until the 19th.  That would be one day before her wedding.

The rehearsal didn’t quite go as planned because there was a major snow/ice moment.  We considered postponing the wedding.  It was touch and go.  Alyssa was a wreck.  Arkie was a rock on the outside, still unsure of what lies beneath.  We got that done, without Arkie’s family.  Sadly, they got more snow than we did and just couldn’t make the trip.  I know that was a hard decision for them to make.

Once home, we did their shower.  Luckily, both my moms were here.  Hannah and Savannah were here.  Once the parents left, we started cooking.  We were all so tired but got it done.  Then, my girl came and snuggled with me until about 2 am.  Sigh.  Worth it all for that moment.

Wedding

All in all, we got it done.  My daughter was breathtaking.  Simply breathtaking.  Arkie.  I tied his tie and saw this sweetness in his eyes.  He really is a sweet boy.  Change is just hard.  Alyssa.  Stunning.  His family was able to come home.  The sun was shining.  Her pictures will be so beautiful with her flowers and the snow.

My mom knocked it out of the park with her flowers, doors, and all the things she creates.  She is brilliant.  My other mom was so helpful.  I’m so thankful my aunt was able to come.  The boys kicked in and helped clean up.  The food was good, the company was good.  Alyssa was so full of joy.  Arkie was so excited about his apple pies.

Health

Big Daddy was diagnosed with diabetes.  He has lost a lot of weight and his sugar levels are really good.  My plantar fasciitis sucks pond water.  That is in my right foot.  In my left foot, I’ve lost feeling in a couple of toes and the top of my foot.  It is due to a bone spur.  Eventually, when I lose feeling in more toes, we’ll address it.  My essential tremors have calmed down as have my psoriasis.

We have some upcoming appointments with Daniel to have him assessed for autism.  Honestly, we have always suspected it but as he gets older, things become more prominent.  Also, we have some upcoming appointments for Jude.  We are hoping to get some help with his FND.  Hunter had a massive treatment that I will address in another post.  So, stay tuned.

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Family Update January 2021

Family Update January 2021

Family Update January 2021

I believe it is time for a large Family Update in January 2021.  SO much has gone on with everyone in my house.  I am physically, mentally, and emotionally exhausted.  Honestly, I do not remember the last time *I* deep cleaned my house.  Sleep is not my friend, my emotions are on edge, and I have gained weight.  Also chopped my hair off, but that is a different story.

January

We started off the year with no school.  Really, no different for us because we were already doing virtual school.  This involved getting Daniel enrolled in high school.  He was coming off of being gone for several weeks and we had to enroll him.  There was a lot of togetherness.  We were all pretty much sick of each other.  Let’s be honest, we’ve been sick of each other since Covid19 and quarantine began.

We had the baby shower for Charleigh.  Again, not what we wanted but what is necessary due to the pandemic.

Counseling Continued and Began for Some

I continued on with counseling through January.  Honestly, it is nice to talk to someone but still frustrating.  I want to see more results, heal more, resolve more.  The boys also started counseling.  Honestly, the jury is still out on it.  They are with the same group as I am, but 2 different fellows.  We shall see how this pans out.  I hope it is successful.  We have goals.  There has been on revelation type opinion that we are further seeking out.

School

Again, it has not been the best experience.  I know the teachers are doing their best, but it is so hard for the students who struggle with special needs.  It’s almost like they are just continuing to ignore and let these kids fall through the cracks.  Just get by.

The kids do get the opportunity to retake homework and such to better their grades.  Yet, one of my kids needs more.  He struggles but no one sees it because he can work really hard and make passing grades.  The invisible disease of Fetal Alcohol Spectrum Disorder, possible autism, and a host of all the other things make education hard.

I am not impressed with the level of care the administration has for my son.  They said that there is nothing really that they can do and I find that disturbing.  Hunter is doing well, for the most part

Technical School and College

Job Corp is still not open, so we are in limbo.  The county that this particular school is in has to go “orange” in order to open.  College is going well for my son.  In the fall, he will begin going to Murray State.  He will start his junior year.  Where did the time go?

Health

It’s been a hard month OMS-wise.  The shaking is pretty significant in his hands.  His behavior is hard.  Schoolwise, he is doing really well.  Jude had one seizure this month.  We did up his meds for epilepsy.  He has not had any more Non-Epileptic Seizures.  The Functional Neurological Disorder stuff is a work in progress.  Daniel is transitioning home fairly well.  It has been an adjustment with him being home.

Family

Bart is okay.  Work is a struggle.  Covid19 sucks.  Bug and Ben are well.  The baby is doing great!  I’m so excited to meet her.  Alyssa and Arkie are engaged.  So, there’s that.  G … life as it happens.  Noah is good, busy, but good.  I pretty much gave the update on the younger boys.

As for me, I’m tired.  Old.  Tired.  Trying to find time for self-care.  This level of parenting is so different.  It isn’t physically exhausting as much.  For me, it is mentally and emotionally exhausting.  I just want to be and do all the things for all the kids.  Sadly, I can’t.

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Large Family Happenings, Medical Issues

Update on Our School Situation

Update on Our School SituationUpdate on Our School Situation

Here is the Update on Our School Situation.  The kids have been in school for 2 weeks.  In those 2 weeks, I have done a whole lot of nothing.  I spot clean the house.  Supper is usually done by about 10 am because I can cook uninterrupted.  I pet the dogs and the cats.  Chip, my outside cat, and I have gotten to be besties.  There have been days I’ve just mindlessly scrolled through the internet.

Lest We Forget

Still did an infusion for Hunter, one day.  Baseball drop-off, pickup, and a game 3 days a week.  A deer through a windshield.  There were a massage and 2 dates with a bestie for lunch/breakfast respectively.  Oh, and naps.  I’ve taken naps.  Homeschooling.  I still have one kid here trying to finish her schoolwork.

Next Week

I have a hair appointment.  Then there is another all-day doctor’s appointment with Hunter.  Again, drop-off, pickup, and another baseball game 3 times a week.  Horse therapy.  A birthday.  And…homeschooling.

Maybe I do still do things.

First 2 Weeks with Daniel and Jude

Daniel is coming into his own.  It takes him a bit more time to do his schoolwork.  He has been dubbed “the smart kid” in his history class.  That title, he has beamed with pride.  He is making friends and eating more than he probably should.  He does love food.  I believe he is finding his way and that brings me joy.

We have discovered that in Jude’s apprehension to wear his hearing aid, he is now okay with it.  Once the student’s asked their 5000 questions, he is now considered bionic.  The obviousness of his skin color has been met with pride. He is wearing his heritage and proud of where he came from.  He is jovial, excited, and thriving.

Then There is Hunter

Hunter tends to express his needs/wants with a great and determined expression.  He now has 2 girlfriends..PA and then the girl with the long pretty hair.  Food has been challenging.  As he has some dietary restrictions, he eats what he can at school, and then I pack food for him.

On the first day of the “strike” system and he gets one for calling a kid “bad.”  Good times.  He has met the nurse with a good amount of blood and scrapes.  Apparently, in the stampede to go outside he got tripped up.  We do homework at night and he is focused.  He is loving it.

Noah Started College

He began this past Tuesday, so as of this posting, he will have been there a full week.  His nerves were shot.  He was so very nervous and anxious.  I think he is finding his footing but he has yet to experience the full-fledged experience of college.  I foresee that it is going to shock him.  He’s got this though.  I know that he is smart and determined.

Alyssa’s School

She has started the first day of her last year of college.   Gracious, she is overwhelmed but gaining traction.  She moved to another apartment and is getting her feet wet in the world of being in a fast-paced last year.  I’m so proud of her.

Grayce Plugging Away

She is still working on finishing her last year of high school.  I was hoping that she would be done by the end of December but I am not sure.  For a fact, according to the state of Kentucky’s requirements, she does have enough to graduate.  I, personally, just have some things I want her to complete.

We have many irons in the fire with what our next step is.  Yet, we just don’t know where to move.  Until I have a clear direction from Jesus…we stand still and do what we have been doing.

Ben and Bug

They are not in school but working hard.  I’m super proud of them both too!  My children bring me such joy.  I’m blessed beyond reason.

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