Lyme Disease

Lyme Does Not Travel Alone

Lyme Disease does not travel alone.  It’s important not to think chronic Lyme disease only stems from ticks.  It is most often congenital and is a gift handed down from your parents.

One of the reasons it can be difficult to diagnose or be considered is because the symptoms are so broad.  The signs are widespread because several co-infections go along with Lyme and everyone has a different combo of them.

Lyme never comes alone it always brings at least one co-infection.  Your symptoms may be fatigue and pain while another has migraines or depression.  That’s because you have different co-infections.

Callie had Lyme and four co-infections well guess who tested positive (although symptom-free) for Lyme and the same four co-infections?

My parents–yup!

Why are they symptom-free?

Here’s how it works: God made you with a fully functioning immune system, and if we left it alone it could handle all the gunk we inherited plus things we are exposed to now.

Any number of things can give it a whack and make it limp a bit where it is not able to fight at its full potential.  When that happens, some of these fundamental things can pop up.

Of course, we all know that the food we eat and all the junk we are doing to ourselves are a factor.  Then other things can give your immune system a whack that’s just enough to be a trigger.

For Callie, it was an exposure to an insecticide (probably while playing soccer).  Then she had her 6th-grade booster shots.  That whacked her body just enough that a month after having them, she began having her first of many symptoms.

Because Lyme Disease does not travel alone, she not only Lyme but four other co-infections that her body was battling.

Any Big Stressor

I’ve heard others have been in a car wreck, gone through a divorce, (any significant stress).  Some had gotten a flu shot, had anesthesia or a significant health crisis.  Afterwards, their symptoms began.

All of those things can affect the function of your immune system letting congenital Lyme take over.  Once Lyme Disease takes over and Lyme Disease does not travel alone, other symptoms begin to emerge.

So if your family tree looks similar to the one below, there’s probably a good reason for it.

Lyme does not travel alone

Related Posts
Lyme Disease Corkscrew-Shaped Bacteria that Burrows

Lyme Disease

Lyme Disease Easy to Diagnose

Lyme Disease Easy to Diagnose

Lyme Disease is easy to diagnose and it is easy to treat.  You might assume that if it were a possible cause to your illness that your medical provider would have considered that before your diagnosis and there’s no need to discuss it now.

If Lyme Disease is easy to diagnose, then why isn’t it standard practice for anyone that shows signs of autoimmune illness, mental illness, autism or other related illnesses?

It’s pure and simple, and nothing shows it better than this picture of Callie administering her IV antibiotics that cost us (with insurance) $700 per week. 

Yes, we had insurance, but they paid for only the first 30 days of treatment. Thirty days is not nearly enough.

She did this 3-4 times each day and would become very very ill afterward.

Our medical system has been taken over by greed thus tying the hands of and misinforming our medical personnel.

I admired his conviction, but honestly, I cannot imagine risking my livelihood for someone I barely know.

Please do not assume your doctors considered the possibility of Lyme before diagnosing you with something else.

Btw we found a much cheaper alternative so don’t let that scare you.

What is a PICC Line?

Lyme Disease Easy to Diagnose

Related Posts
ALS and Lyme Sneaky Little Bug

Lyme Disease

Where Does Your Body Hurt?

Where does your body hurt?

So, where does your body hurt?  Your joints, your head, your fingertips, your back?  Why are there so many symptoms of Lyme disease?

The bacteria is corkscrew shaped and can bore into any tissue or organ in your body.

Some people have neurological issues because it is predominantly in their brain, some in their digestive tract or back or anywhere from the top of your head to the bottom of your toes making it difficult to diagnose just based on symptoms alone.

Testing is super easy with the Western blot test from Igenex Labs!

When your body is hurting, all over, it is time to enlist the big guns at Igenex Labs!  From what I understand, this is the only reliable lab in testing for Lyme.  Other labs can give a false negative and that is certainly not what you want.  The key to healing is  getting a correct diagnosis.

There are so many co-morbid things that exist with Lyme.  It is really sad and scary.  I have actually met someone who had never seen a tick or had one attach to that person.  He was so confused as to how one “does not feel” it when it bites.  That is so bizarre to me.  I guess I just figure that everyone knows.  So very wrong, LOL.

Lyme Disease

Things That BITE Lyme Disease

Things That BITE Lyme Disease

Things That BITE Lyme Disease.  They do not always carry Lyme, but they can. Lyme is not restricted to a deer tick! Although, I don’t remember being bitten so I couldn’t have Lyme, right?
Well, no…other insects can carry Lyme, can they?  Also, the most likely insect that carries Lyme is a tiny little deer tick.  Educate yourself!  Don’t settle for a “pat” answer.  Know your stuff.  Become a student of your issues and that will serve you with your physicians.  Let yourself speak loudly!


Unless it was in an obvious spot, you wouldn’t have seen it and you may or may not have had a bulls-eye rash.  50% of people *never* see the bulls-eye.  You can be bitten and have no obvious symptoms for years.  How amazing is it that you can have all these symptoms and never know the root.

Educate yourself.  Do not settle for a diagnosis.  Also, do not assume that your doctor knows.  This is a scary thing but it is curable!

Early Signs and Symptoms (3 to 30 Days After Tick Bite)

Facial Palsy

“Classic” Erythema Migrans Rash

  • Fever, chills, headache, fatigue, muscle and joint aches, and swollen lymph nodes may occur in the absence of rash
  • Erythema migrans (EM) rash (see photos):
    • Occurs in approximately 70 to 80 percent of infected persons
    • Begins at the site of a tick bite after a delay of 3 to 30 days (average is about 7 days)
    • Expands gradually over several days reaching up to 12 inches or more (30 cm) across
    • May feel warm to the touch but is rarely itchy or painful
    • Sometimes clears as it enlarges, resulting in a target or “bull’s-eye” appearance
    • May appear on any area of the body
    • Does not always appear as a “classic” erythema migrans rash

Things That BITE Lyme Disease

Related Posts:

Crohn’s, IBS, Colitis, Behcets

Lyme Disease Corkscrew Shaped Bacteria Burrows

Lyme and Schizophrenia

Attack Root Cause of Illness

Lyme Disease

Crohn’s IBS Colitis Behcets

Crohn’s IBS Colitis Behcets  Most of the “Lymies” I know have been told they have IBS.

Crohn’s Disease Symptoms


Colitis Symptoms

Behcets Symptoms

It’s on my list of medical things that have popped up, however, we’ve given it a name.  Surprisingly, we did not check to find a root cause.

For example, with Lyme, any muscle in your body can spasm.

Also, tummy troubles and Lyme go hand in hand.

Please, be aware, ask questions, do not take NO for an answer, advocate.  You are an expert on your body, do not let anyone tell you any different.

Crohn's IBS Colitis Behcets


Related Posts:

How To Get Tested

Callie and Her Journey With Lyme

Now It Is Time to Freak Out

Lyme Disease

Lyme Disease Corkscrew-Shaped Bacteria that Burrows

Lyme Disease corkscrew-shaped bacteria burrows. I had to post this for my “older” friends (haha)
In all seriousness why is Lyme so hard to detect?
Because the bacteria is CORKSCREW SHAPED and it twists and buries itself absolutely anywhere in your body. 🙈
As if that isn’t enough alone it creates a biofilm that makes itself invisible to your immune system.
It digs in and hides and your body can’t find it to even attempt to fight it.

Here is a link that details Corkscrew-shaped Bacteria.

Lyme Disease corkscrew-shaped bacteria burrows

Related Posts

Lyme Does Not Travel Alone

Lyme: Easy to Diagnose: Easy to Treat

Every Lyme Story is the Same

Lyme Disease

Lyme & Schizophrenia

Lyme & Schizophrenia. Who knew Schizophrenia was a co-morbid symptom of Lyme Disease. Please, if you struggle with mental illness, please get tested.

I’ve yet to meet a “Lymie” that doesn’t have the bacteria in their brain to one degree or another.

How much suffering could be avoided if a part of testing for mental issues included testing for Lyme?

We are tossing meds at people to control their “issues” but often not getting to the core of what caused them to be this way.

I heart docs that look for a cause to solve the issue instead of medicating the symptoms.

Lyme & Schizophrenia

Lyme Disease

Attack the Root Cause of Your Illness

Attack root the cause of your illness by being informed!  I am entirely convinced ALL autoimmune, many mental diseases, as well as autism, have Lyme disease at the root core.

Furthermore, if you aren’t attacking the root cause, your fight will be much more difficult.

Also, the symptoms are different for everyone and NUMEROUS.

Igenex lab is the ONLY lab in the country qualified to do a proper test, however, in our area, most doctors use Lab Corp.  Sadly, they do the wrong test.

Testing and the cure are easy peasy!

Attack root cause of your illness by getting tested!

Attack the Root Cause of Your Illness

Related Posts:

Root of your Illness

Lyme Disease: Easy to Diagnose: Easy to Treat


Lyme Disease

Guest Blogger Callie and Her Journey with Lyme

Guest Blogger Callie and Her Journey with Lyme

Meet my Guest Blogger Callie and Her Journey with Lyme.  I met her parents before she was ever a speck in their eyes.  Our families were neighbors and her mom, Lesley, and I were pregnant at the same time as the girls 🙂  It was lovely! Callie was born a couple of weeks before my daughter, Victoria.  

Please read the story that spurred on my desire to have this Lyme Disease Series.  I’m so proud of this young lady, and her testimony is one that only God could orchestrate!  

If you have ANY questions, please feel free to email me at I will put you in touch with Lesley, and she can share the details of how God chose an unconventional method to heal this sweet beauty of a crapola disease! 

You can also view more snippets thought the month of January.  Lyme Does Not Travel Alone and What Is Lyme, amongst other posts for this month.

There’s No Suffering Without Glory (Her Journey with Lyme)

by:  Callie E.

I’m sure if you’ve been keeping up with the Lyme series on Brandi’s blog up to this point, you know quite a bit of my story and a significant amount of information about Chronic Lyme Disease.

So while my blog post is going to be based on Lyme awareness and my personal battle with the disease, I’m hoping that the more significant message that will come across is that no suffering occurs in vain when it is for the glory of God.

Before I delve into all of the medical mess, I want to give a little background information to those reading this.

I grew up in a Christian home, and at age seven I knew that I was dearly loved by the Father, that I loved Him in return, and that I desperately wanted Jesus to rid me of my sin debt so I could spend my eternity with Him.

I want to be clear, that I came to know Jesus as my Savior long before I had any medical issues.

My Beginning

My journey with Chronic Lyme Disease began in sixth grade when I started to faint at completely random times. I eventually reached the point where I was fainting roughly ten times a day.

My symptoms only continued to increase from there. At age 13 my knee pain was so severe that I received steroid shots in both knees and yes, shots in the knee are as awful as they sound.

As I proceeded into eighth grade, my back, shoulder, and neck pain began to develop. By the end of my eighth-grade year, my pain was so severe that I was physically incapable of opening my bottom locker, I relied on others to open my cabinet for me.

This next symptom, for me, is the hardest one to reflect upon. This is the point where I began to experience what I now know to be “Lyme rage.”

My life lived in a state of unjustified, uncontrollable anger.

During this time, I was unkind to my family. I was even struggling with kindness with a couple of close friends. There is no exaggeration when I say one of my family members could look at me, and I would begin to feel myself getting angry.

The worst part is that I could feel myself getting angry so I would try to assess why I was so mad, and even after I couldn’t find a single reason, I found myself unable to stop the anger from welling up inside of me.

Needless to say, my family is a really fantastic group of people for not only dealing with me during this time but continually showing me grace and love.

At this point, I was angry, sore, and dizzy. My symptoms began to grow worse.  I continued to be given misdiagnoses and pills. Luckily I have a really awesome mom who went above and beyond for four years, ignoring ten misinformed doctors to find the only Chronic Lyme Disease expert in the area.

We saw this doctor sometime around my sophomore year of high school. I’m not sure if anyone picked up on this idea from my mom’s post, but…


Right before we discovered this doctor, I went to church camp. While I know it’s super cheesy, going to camp allowed me a much-needed break from distractions and afforded me the opportunity to learn what it actually meant to be a Christian.

You’re probably thinking that you haven’t heard much about my walk with Christ until just now and you’re right. That’s because, at age seven, most of us aren’t dwelling in sin that requires us to make an extreme life change.

In fact, I made no changes at all as the years passed and my spiritual growth was utterly stagnant.

Fortunately attending camp presented the Spirit with an opportunity to convict me.  This all happened while I wasn’t distracted by soccer, school, or being sick.

I became aware that I behaved well and made good choices because I have strict parents and that’s how they raised me to act, not because I was trying to live a life worthy of the gospel (Philippians 1:27).

My eyes were opened to what being a Christian actually entailed as well as actually believing that He had a plan for my illness.

Up until this point when I asked I would half-heartedly respond that God had an idea for it.

After learning what it meant to follow and pursue Christ really, I was finally able to fully grasp the concept that I was enduring this trial for a purpose.

Medication Protocol

God blessed me by allowing me to understand that He had a plan for this illness right before I entered into the most challenging time in my life.

I can never communicate how gracious He is for doing so, this enabled to rely on Him wholly during this time.

My physical difficulties began when I started taking some powerful oral antibiotics to fight off the Lyme. I reached the point where I was making roughly 15 pills a day.

During Lyme treatment with antibiotics your body can respond in weird ways, and frequently you have to go through phases of feeling worse before you can feel any better.

For me, this meant I would wake up for school in the morning and be unable to sit up. I’m not exaggerating when I say I couldn’t move.

There would be days that I would make it to school, but I would be sitting in my desk, and I would be in so much pain that I would be on the verge of tears or would literally be unable to hold my head up without using my hands because of how badly my neck hurt.

Because of how many and how strong the pills were that I was taking, I really struggled to keep anything down. I threw up almost daily-which defeated the purpose of taking the pills. Because I couldn’t keep all of the tablets down, my doctor decided to pursue a different route.

PICC Line 101

This was the time in my life that I ended up getting two PICC lines. PICC lines are inserted into your arm.  They run through your vein, all the way to your heart. This allows IV medicine to be dropped directly into your heart.  That way, sit can reach your entire body much faster.

As much fun as this sounds already, process as the whole can become twice as high as my body began responding to the medicine.

Random parts of my body would go numb, as much one entire side of my body would lose all feeling. I would also start shaking uncontrollably. At this point, Lyme rage was taken over by random crying.

I am completely serious when I say that I would be bawling, but telling my parents that I wasn’t sure why I was crying.

While switching to IV antibiotics prevented me from throwing up medicine, the antibiotics were still so intense that I continued to get sick regularly. During the really rough times, I typically ran a fever of 103°F.

All of the physical turmoil the antibiotics put me through left me overly weak.

I had to sleep on an air mattress, in the living room.   Walking from the bedroom to the bathroom was too complicated.

My mom even had to sleep next to me on the couch.  Mom had to do this because it was unsafe, for me, to be left alone throughout the night.

Because of this, 50 days of school were missed from August to December of senior year.

A Body will do What a Body will do

During this time, we began to notice a pattern with my body’s response to antibiotics.  After about two weeks, I would become allergic.

I would need to switch medicines.  This happened in roughly five different medications.  Eventually, I ran out of possible drugs to use to treat Lyme.

While contemplating my PICC line options, the line got clogged. For PICC line users clogs, infections, and blood clots will force you to remove your line…so at the time this blog was a big deal.

We were able to go to the ER and have it unclogged. In hindsight, the clog was more than likely God’s kind way of telling me to take it out.

My skills of perception were not up to par.  I missed this, even after 5 failed medications and a clog.  The night after the PICC line was unclogged, a blood clot formed.

Consequently, the next week was spent in the hospital.  The PICC line had to be removed.   My mom and I had no idea what type of treatment to pursue next, we felt as if we had exhausted all of our options.

After a lot of prayers, God led us to a small homeopathic clinic.  It is about 12 hours away from our home.

I will not delve into the details of the treatment.  If you would like more information, you can obtain that information by contacting my mom or me.

After only three days, I was feeling better than I had in years. Total healing continues for several years after the initial treatment though. Two years later, I am still continually improving and adjusting to life as a healthy college student.

Callie:  A New Beginning

Reasonably often, well-meaning friends will ask about my experience with Lyme and say,

“Oh my goodness, that’s terrible!” 

“Wish you had found that homeopathic clinic sooner.”

“I bet you wish you could erase that from your past.”

My answer is always no.

I don’t answer this way because I am trying to get attention.  There is no desire to appear more “religious” than anyone else.  I answer, in this way because without this season, I would be a vastly different person.

This time of suffering and trial made things very clear.  God was directing me towards a specific profession to carry out His will. How many 18 year-olds are able to confidently say that they know what job they want to pursue?

I also cannot stress enough how pivotal of a rule this illness played.

In that, not only becoming the person that I am today but becoming firmly rooted in my relationship with Jesus. I’ve thought about where my walk with Christ would be without those six years.

Every single time, I end up feeling the same thing: thank goodness I was sick.

Draw Me Close to You

God was able to use something so dark and scary in my life, to, shed Light on what was important.

He used this time to draw me near to Himself. My chosen profession and my illness will bring God glory.  My time of sickness allowed me to see how I can use this experience.  I want to use this to glorify Him and bring healing to others.

Which is why I agreed to write this for Brandi’s blog. God has used our story.  In this story, we have been able to personally share healing.  We have also shared the gospel with over 300 people in the US, Canada, and Norway.

I do want you to come away from this post with new knowledge about Chronic Lyme Disease. I also want you, as a reader, to be more impacted by this idea.  Trials, in life, will be used for His glory. They can also reveal a purpose for your life that is far beyond what you could have ever conceived.


Related Posts:

Time to Freak Out

Sneaky Little Suckers

ALS and Lyme

Things that Bite


Lyme Disease

Time To Freak Out

Time to Freak Out

Sorry…but time to freak out.

I waited as long as I could but yes folks, scientist have found Lyme in most biting insects. 😔

Between congenital Lyme (handed down generation to generation) and how easily it is to be bitten by something it is vital we are informed and aware of the possibility, anyone can have it.

Don’t be frightened or paranoid.

Always think preventively and watch for signs after a suspicious bite.

More than likely if you have a healthy immune system it will take care of it.

Some need two weeks of Doxycycline to nip it.

Either way, it is fixable just don’t wait until it manifests into something big that causes damage to your body.

What symptoms are you watching for?

Flu-like symptoms…achy joints and muscles and fever.

Callie and Her Journey with Lyme

Time to Freak Out