trudging through the muck of life

Let’s be real…parenting is hard. Parenting a child with a rare disorder like Opsoclonus Myoclonus Syndrome (OMS)? That’s a whole different level of hard. Some cases of OMS are tied to a type of childhood cancer called neuroblastoma. Others, like ours, are idiopathic which is a fancy way of saying, “We don’t know why this…