New beginnings. They carry a quiet kind of hope—soft, steady, and full of promise. Today is the last day of June, and with it comes a shift. This is the final post I will write about our journey with Opsoclonus Myoclonus Syndrome (OMS). It’s not the end of the story, but it is the closing… Continue reading New Beginnings: The End of One Chapter, the Start of Another
Tag: chronic illness
Make A Wish and Give Kids The World
For children and adults navigating life-altering medical conditions, the days can feel long, uncertain, and heavy. Between appointments, therapies, and the emotional toll of managing a chronic or critical diagnosis, joy can feel like a distant memory. That’s where the Make-A-Wish Foundation steps in—not just to fulfill a dream, but to restore hope. When we… Continue reading Make A Wish and Give Kids The World
Did You Even Know You Were Looking at a Miracle?
“Did you even know that you were looking at a miracle?” That question caught me completely off guard. It came from a gentleman sitting nearby in the waiting room of our chiropractor’s office, and it landed in my ears like a divine interruption. Amid my self-imposed chaos, his words cut straight to my heart. I… Continue reading Did You Even Know You Were Looking at a Miracle?
Beads of Courage – A Story of Strength and Recognition
Beads of Courage – A Story of Strength and Recognition. For two years, we’ve tried to access the Beads of Courage program—a powerful way to honor children facing life-altering health conditions. I first discovered this initiative through a fellow blogger whose child received these meaningful beads. The concept stayed with me. At one point during… Continue reading Beads of Courage – A Story of Strength and Recognition
When the Doctor’s Told Me There Was No Hope
I will never forget the day a doctor told us, “There’s no hope.”Not in those exact words, maybe—but close enough. The weight of it settled like a stone in my chest. My son—my precious, brave boy—was facing Opsoclonus Myoclonus Syndrome, and suddenly, it felt like the world was holding its breath. When the Doctor's Told… Continue reading When the Doctor’s Told Me There Was No Hope
Hold On to Hope
When my son was diagnosed with Opsoclonus Myoclonus Syndrome (OMS), the world shifted beneath our feet. It was one of those moments that divides life into before and after. Fear came crashing in, and the questions outnumbered the answers. The only phrase that permeated through my life was "Hold On to Hope." In the middle… Continue reading Hold On to Hope
Lyme Disease Information- Diagnosis- Healing
Lyme Disease Information- Diagnosis- Healing My friend, Lesley Emerson, wrote about her daughter's Lyme Disease journey a few years ago. Soon after that, we did a series of informational posts on Lyme. After the series, Callie was brave enough to write and bear her soul on this journey of illness, healing, and faith. To ensure this story… Continue reading Lyme Disease Information- Diagnosis- Healing
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