New beginnings. They carry a quiet kind of hope which is soft, steady, and full of promise. Today is the last day of June, and with it comes a shift. This is the final post I will write about our journey with Opsoclonus Myoclonus Syndrome (OMS). It’s not the end of the story, but it…
I will never forget the day a doctor told us, “There’s no hope.” Not in those exact words, maybe but close enough. The weight of it settled like a stone in my chest. My son, my precious, brave boy, was facing Opsoclonus Myoclonus Syndrome. Suddenly, it felt like the world was holding its breath. When…
There’s something uniquely painful about being told a hundred different things, only to be left holding nothing solid. H’s journey has been filled with more questions than answers and more misdiagnoses than I care to count. This is a small snippet of what it took to finally land on something we could name. But even…
There’s something about this verse that stops me in my tracks. Even when there was no reason for hope… Abraham kept hoping. Why? Because God had said. I was told there was no hope in my son living, however, Even When There Was No Reason for Hope. This isn’t blind optimism. This isn’t wishful thinking….