When Your Parent Starts to Need You
When Your Parent Starts to Need You When Your Parent Starts to Need You and the moment roles begin to shift, there is a moment that doesn’t announce itself. There…
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How Parents Can Nurture Curiosity
A note from Brandi:This guest post is shared with permission and reflects the personal experience, research, and perspective of the writer. It discusses parenting, child development, curiosity, learning environments, family…
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Twelve Candles After Silence
Content note: This post includes a personal reflection on medical trauma, a child’s medical crisis, and survival. Not Ready Yet: Twelve Candles After Silence The room was supposed to be…
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What Do I Say to My Kids
Content Note: This post discusses suicide, suicide loss, suicidal thoughts, grief, mental health, emotional pain, or crisis support. Please read with care. If this topic feels activating, it is okay…
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Suicide Warning in Kids and Teens
Content Note: This post discusses suicide, suicide loss, suicidal thoughts, grief, mental health, emotional pain, or crisis support. Please read with care. If this topic feels activating, it is okay…
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Neurodivergence and Suicide Risk
Content Note: This post discusses suicide, suicide loss, suicidal thoughts, grief, mental health, emotional pain, or crisis support. Please read with care. If this topic feels activating, it is okay…
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Helping Kids Grieve a Suicide Loss with Compassion
Content Note: This post discusses suicide, suicide loss, suicidal thoughts, grief, mental health, emotional pain, or crisis support. Please read with care. If this topic feels activating, it is okay…
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Be Careful of Social Media
Content Note: This post discusses suicide, suicide loss, suicidal thoughts, grief, mental health, emotional pain, or crisis support. Please read with care. If this topic feels activating, it is okay…
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New Beginnings are the End of One Chapter and the Start of Another
New beginnings. They carry a quiet kind of hope which is soft, steady, and full of promise. Today is the last day of June, and with it comes a shift….
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With Every Joy and In Every Hope
This journey with OMS has brought me to my knees more times than I can count. It has stretched me, refined me, broken me open and built something stronger in…
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Make A Wish and Give Kids The World
When a child lives through a life-altering medical condition, the whole family learns how heavy ordinary days can feel. Appointments, therapies, fear, exhaustion, and uncertainty can crowd out joy. For…
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Did You Even Know You Were Looking at a Miracle?
“Did you even know that you were looking at a miracle?” That question caught me completely off guard. It came from a gentleman sitting nearby in the waiting room of…
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Beads of Courage is A Story of Strength and Recognition
Beads of Courage graphic representing medical milestones, pediatric bravery, chronic illness, Child Life support, and hope for children with medical challenges. For two years, we’ve tried to access the Beads…
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Dear Special Needs Mama
Dear Special Needs Mama, I don’t know your name, but I know your heart.When I look at you, I see the bags under your eyes and the fear behind your…
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The Day He Ran was Our Beach Miracle
I can still feel the sand under my feet and I can still remember The Day He Ran. Our Beach Miracle. The sun was setting, the breeze was just right,…
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When the Siblings Are Watching
When your child is sick, your entire family gets pulled into the storm. What some people may forget is that there are other siblings in the home. This is about…
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When the Doctors Told Me There Was No Hope
I will never forget the day a doctor told us, “There’s no hope.” Not in those exact words, maybe but close enough. The weight of it settled like a stone…
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Speaking the Language of Rare – Part 2
Speaking the Language of Rare – Part 2 In Part 1, I walked through some of the most common medical terms we’ve come to know and use daily. In Part…
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Speaking the Language of Rare – Part 1
In Speaking the Language of Rare – Part 1, when you live with a rare diagnosis, medical terms start to feel like household words. In our world, terms like IVIG,…
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A Father’s Faith
A note from Brandi:This reflection was written by my husband, Bart, as part of our family’s OMS journey. A Father’s Faith: Holding the Fort While My Son Fought to Walk…