Trudging Through the Muck of Life
Let’s be real…parenting is hard. Parenting a child with a rare disorder like Opsoclonus Myoclonus Syndrome (OMS)? That’s a whole different level of hard. Some cases of OMS are tied…
-
-
Praising God in the Cold and the Storm
There’s this image I used to carry. It is an image of me, my family, sitting around a cozy campfire, singing Kumbaya. Everything is warm, glowing, peaceful. That’s how life…
-
Scrolling Through the Storm
Every now and then, I open up my Facebook memories and come face-to-face with the version of me who was holding it together with prayers, sarcasm, and sheer willpower. These…
-
The Long Road to a Name
There’s something uniquely painful about being told a hundred different things, only to be left holding nothing solid. H’s journey has been filled with more questions than answers and more…
-
When the Calm Breaks
We got to the Children’s Hospital ER, and I remember the moment clearly. The calm I had been carrying started to fray. There’s a shift that happens when the staff’s…
-
“Being Brave” H’s Story in His Own Words
A note from Brandi:This post includes H’s words and is shared with his permission as part of our family’s OMS journey. Some stories are best told in the words of…
-
Even When There Was No Reason for Hope
There’s something about this verse that stops me in my tracks. Even when there was no reason for hope… Abraham kept hoping. Why? Because God had said. I was told…
-
The Shaking Doesn’t Stop
The Second ER – Misdiagnosis #2 We made arrangements for the kids, packed bags, and headed 2.5 hours to Nashville. We arrived at Vanderbilt Children’s Hospital in the middle of…
-
Before the Shaking Began
A Sweet Night at the Ball Field On this day in 2017, Before the Shaking Began, I had been with my Lady, and I knew her family was coming into…
-
When Your Child Is a Medical Zebra or an Okapi
As I continue sharing our journey with Opsoclonus Myoclonus Syndrome, I wanted to highlight a resource that may help bring clarity to people who have never heard of this rare…
-
Understanding Opsoclonus Myoclonus Syndrome (OMS)
Medical information note:This post is shared for education and awareness only. It is based on our family’s experience and general information about OMS. It is not medical advice, diagnosis, or…
-
8 Years Ago: The Beginning of Change
A Journey of Faith, Fear, and Finding God in the Chaos 8 Years Ago Our Lives Changed, our world shifted in a way we never saw coming. Our youngest son…
-
Faith Through the Fog: Our Journey with OMS, Eight Years Later
In the month of June, I’m leaning into something I’ve long put off and that is sharing more of our story, the unfiltered version. Eight years ago, our lives were…
-
5 Unexpected Ways Starting Over Can Make Your Life Better
5 Unexpected Ways Starting Over Can Make Your Life Better Here are 5 Unexpected Ways Starting Over Can Make Your Life Better. After a rough start (and finish) to my day, I…
-
Not All Storms Disrupt
Not All Storms Disrupt. Some Clear Your Path Life can often feel like an unpredictable storm. It can feel chaotic, overwhelming, and full of uncertainty. We face challenges, setbacks,…
-
You Can Always Begin Again
No Matter How Hard the Past Is, You Can Always Begin Again Life has a way of throwing us into storms we never saw coming. Painful moments, regrets, and heartbreak…
-
Mental Health Check-In
Hey, friend. Let’s take a moment for a mental health check-in. Life gets busy, overwhelming, and downright chaotic at times. But right now, pause. Breathe. This moment is yours. Give…
-
Why Am I Feeling Anxious?
So, we am I feeling anxious? Leave comments below for why you are experiencing anxiety. Anxiety has a way of sneaking in, sometimes without warning. One minute, you’re going about…
-
Fighting the Darkness Together
Content Note: This post discusses emotional darkness, depression, mental health struggles, and may include crisis-related themes. Please read with care. If you are in crisis, thinking about suicide, at risk…
-
Inspiration of the Day Mark 5:36
Faith Over Fear: Learning to Trust in God The inspiration of the day is found in Mark 5:36, which says, “But Jesus overheard them and said to Jairus, ‘Don’t be…