Faith in Hard Places, Medical, Opsoclonus Myoclonus Syndrome

Scrolling Through the Storm

Scrolling Through the Storm – Facebook Memories from the Fight Every now and then, I open up my Facebook memories and come face-to-face with the version of me who was holding it together with prayers, sarcasm, and sheer willpower. These aren’t polished updates or carefully worded reflections. These were typed in hospital rooms, from car… Continue reading Scrolling Through the Storm

Faith in Hard Places, Medical, Opsoclonus Myoclonus Syndrome

The Long Road to a Name

There’s something uniquely painful about being told a hundred different things, only to be left holding nothing solid. H’s journey has been filled with more questions than answers—and more misdiagnoses than I care to count. This is a small snippet of what it took to finally land on something we could name. But even more… Continue reading The Long Road to a Name