These days, life looks different than it did during the thick of H’s treatments. We’re no longer spending weeks on end in the hospital, juggling chemo, IVIG, ACTH, and emergency room visits. But just because we’re out of that season doesn’t mean the journey is over. Life today is still challenging.It’s just a different kind… Continue reading What You Don’t See – Life Today with OMS
Tag: pediatric neurological disorders
Understanding Opsoclonus Myoclonus Syndrome (OMS)
Understanding Opsoclonus Myoclonus Syndrome (OMS): What It Is and Why It Matters As part of this series on navigating life after a rare diagnosis, I wanted to take time to share more about what Opsoclonus Myoclonus Syndrome (OMS) actually is. It's a disorder many have never heard of, yet for the families affected by it,… Continue reading Understanding Opsoclonus Myoclonus Syndrome (OMS)