Medical Issues, Opsoclonus Myoclonus Syndrome

Part 3 Welcome Home

Part 3 Welcome Home

 

Part 3 Welcome Home. My flesh screams, hanging onto my airplane seat’s armrests. I refuse to move. This is my anniversary. This is our planned TRIP. We are not moving. I do not want to stay. I would live in France if I had to, but guess what? I don’t have to. We are traveling, that’s it. No more, no less. I sit there, stunned. Unable to move or comprehend what I’m about to see/smell/witness in this country, I have never planned to go to Holland.

What I Envision Versus Reality

The plane’s door opened, and we grabbed our luggage. This was the luggage that was packed for a France trip. We got off the plane. My first thought is the drabness of the airport—the busyness of it. I felt like I needed to wash my hands because so many people were touching me. They were all speaking in different languages. I watched their mouths move, trying to read lips or get a nugget of information, but I couldn’t. I couldn’t understand any person or sign. There was also not a single person who spoke English. I felt trapped in this foreign country. There was nowhere, no one to guide me, no vehicle, no home, no food, nothing.

Overstimulated Moment

I picture us grabbing our stuff and trying to find our way out of that blasted, loud, big, busy airport. There was a moment when I needed air. Sadly, I was overstimulated by the news and anxious because this was entirely out of our control. Air, I needed to breathe fresh air and take a moment to regroup. I was thrown into something that was not of my doing. There were two choices: I could curl up in a ball and sob or find a way through the fear and uncertainty.

Ray of Sunshine

As I processed this news, I felt a ray of sunshine hit my face. I felt a cool breeze as we walked outside. In one moment, I opened my eyes, and from as far as the east was from the west, there were tulips. I love tulips. Honestly, I love their beauty, the array of colors, and the smells. Tulips come up every single year without fail. Far off, in the distance, I saw windmills. The most gorgeous background I have ever seen in my life.

Absorbing my Surroundings

As we walk around, absorbing our surroundings, we think about Paris and what we will miss. The art, the food, the atmosphere, all of our plans, all the cool things we would see, yet we had to mourn that because we knew we were “stuck” in Holland. Don’t get me wrong; Holland is phenomenally gorgeous. It is just where I wanted to be. I don’t mind a visit, but why must we live there. We had to mourn not seeing our family, our home, American food, and the freedoms we had in America. There was just a lot to process.

Once our mourning was over, we settled into this new life, this new place with all these new sites, foods, noises, and smells. We began to acclimate to our surroundings, and we began to learn about the cultures and the foods.

Holland and Its Beauty

Holland has its beauty, but it was not what we had initially planned. We had to learn to adapt and compensate for what we wanted to see in Paris and what we wanted from home. It wasn’t bad, just different. It was a change, and I’m not one to like change.

I had to learn that I could not “fix” my children…only God could and will do that. I had to learn to let go of control and begin to love what is. By mourning the loss of what was going to be a 10-day vacation to Paris, I was losing out on what was surrounding me.

Seeing Things from a Different Perspective

With new colors, new foods, and new scenery, I began to love my new home, and I began to change by loving it. Ironically, I began seeking God more and seeking help for my depression. Also, I learned that FASDRADSingle-Sided Deafness, and Opsoclonus Myoclonus Syndrome do not define my children. Finally, I learned how to love again and my God, my husband, and my children for who they were, not what I “envisioned” them.

Be open to change. Be open to new things. Stop trying to fix things. Stop trying to control what you are not meant to control.

Live life and love without abandon.

 

 

Medical Issues, Opsoclonus Myoclonus Syndrome

Part 2 Uhm NO

Part 2 Uhm NO

 

Part 2 Uhm NO

Uhm, WHAT??????!!!!!!!!!!!! Holland? Uhm, no. No, thank you. I know nothing, and I do not have an itinerary. Sadly, I do not have a place to stay. I don’t know where to eat. I know nothing. NOTHING. I can picture myself asking the stewardess if this is a layover. How long it will be before we arrive in PARIS, FRANCE. Then, she says that this is our destination.

Our ticket is one way, and they will add our children/pets onto the plane for the trip. This is where we will live out our days until the Lord sees fit to move us somewhere else. I had planned on staying in France for ten days, not my life. I certainly did not plan on LIVING in Holland, and what the heck do you mean you will bring our kids during the flight?????????

When we started creating our family, we had definite plans.

Big Daddy wanted one child, and I wanted 4. We compromised on 3. Our oldest was high-strung, motivated, and determined. She is also super sensitive to bright lights and noises and does not care for many people. Our second was a pistol. She was creative, loved animals, and told you like it was regardless of if it was appropriate or not. She has a bit of a lazy streak and wants things done for her more times than not. Our third, our only biological son, was an easy baby until he wasn’t.

N’s Journey

He was the first to crawl. He babbled, talked, loved eating, and then he had his 12 mths shots, and his life changed. Maybe that was when we were “packing” to go to Italy. It was like shades pulled down over his eyes. He stopped talking, threw lots of fights, and had sensory issues. It was tough. Our life was now full of speech therapy, occupational therapy, and physical therapy. It was hard. The Lord guided us and helped us and allowed me to have a great deal of soaked in knowledge. Today, you would never know anything was ever wrong.

So with V, we started planning the trip. A, we started saving for the trip. Then, with N, we got on that plane and headed to Paris, France, to see all the things we could see on a 10-day trip.

Then there was God.

As we were flying, God saw fit to allow two more kids to join our crew. These kids were older than came from severe trauma physically, mentally, and emotionally and among other trauma, He thought it’d be a good idea to have Big Daddy and me raise them. It was almost like He threw me into the lion’s den as he did with D. I was unprepared. Realistically, I could love the FASD (Fetal Alcohol Spectrum Disorder), RAD (Reactive Attachment Disorder, Behavioral Issues, Dyslexia, Developmental Delays, Food gorging/hoarding/stealing out of them. Sadly, I wanted to fix them. Plain and simple.

While I was “trying” to “fix them, “…..God showed up again.

This time, it was a brief detour, on our flight, to Ethiopia. The trip there was ROUGH. It was full of turbulence and engine problems. We thought and were told we would not make it, but GOD had other plans. We made it. Instead of a 24 hr flight, it would take us 15 mths to get from where we were (on a plane headed on vacation to Paris) to Ethiopia because He wanted us to add to our dysfunctional crew. He was another older child, and he had a malnutrition brain and some behavioral issues; and we came to find out that he was deaf in one ear. He was not a little bit hearing impaired but deaf. Again, I could fix this. I could continue raising all these kids while “fixing” their issues and problems. I was content, tired, and overwhelmed but content.

But then, there was God again.

There have been tears from our first child to our sixth child. I was sitting on that plane, wishing to be at our destination so I could have some respite and time to breathe. God decided to be my breath and to live for me. He did this in the form of our seventh child, our Okapi.

I thought the stress of trying to fix my FASD, RAD, ADHD, PTSD, Dyslexia, Learning Disabilities, Deafness, Autistic tendencies, and Opsoclonus Myoclonus Syndrome was going to bring me to my knees. Oh, heck no, this little dude came into my life and turned it upside down. He has taught me so much and given me such joy, but he also went from an ordinary little boy to a medically fragile kid in about 4 hrs. Please hear me say. I would not change a thing with this little guy. He brings us joy and happiness even amid uncertainty with his health.

Part 3: Welcome Home.

 

Medical Issues, Opsoclonus Myoclonus Syndrome

Part 1 Heading to Paris or Are We

Part 1 Heading to Paris or Are We

Part 1 Heading to Paris or Are We

Part 1 Heading to Paris or Are We? Let’s all take a moment and soak in the beauty of David. Michelangelo was a master of his craft. God created this man and honed his craft to leave people like me breathless. I love art and always have had a great love of art. I enjoy expressing myself and my emotions through painting, sketching, and doodling. My dream is to go to the Louvre in Paris. I want to absorb it all. I don’t want a guide. I don’t want to be in a group. I like the freedom to walk, stand, admire, and ingest all the glory of all my favorite artists. It is a dream. To see this in person and the Headless Angel, oh and to see the Mona Lisa. Oh. My. Word. Can you even imagine?

25th Anniversary Trip

The GLORY of this is that I’m going to go!!!!! Next year, Big Daddy and I will be married for 25 years. God willing, our trip to celebrate will be in Europe. Big Daddy does not care for museums or art, but I could and probably will spend an entire day there. I want to revel in the beauty of these timeless pieces.

When we go on vacation, I spend MONTHS researching. I will find places that we both want to go to while there. There will be a time when I research all the restaurants and incredible attractions and prep (financially) for any things that require money. I will have a complete itinerary. When we went on our 20th anniversary, I had eight pages of places, addresses, phone numbers, and websites to go to Niagara Falls! Planning is fun for me. I am SO excited. Niagara Falls is on my bucket list. This is a dream. Bart and I live in the US. We have visited Canada, Mexico, and Africa. We still have a few more continents to go before I am content 🙂

Flying Away to Paris

Now, I can imagine being on that plane (I love to fly) and jetting off into the sunset. My kids and pets are all well taken care of at home. I have my fella, and we are off! There is a moment when I’m so excited that I can’t even stand it. I can imagine being even more excited than when I went to Africa cue heartstrings cause I love Ethiopia. As we travel, we eat, sleep, watch tv, read, and use the bathroom on this plane. It is our home for however many hours we are on it, and we will revel in this little getaway.

My Version of Welcome to Holland

When I read this poem, it reminded me of our trip that we ARE planning for next year. My mind began to wander, which is the scenario I imagined.

We get the overhead notification that we are preparing to descend. Finally, we are there. We have made it. We have arrived. We start to land, and the plane screeches down the runway to make a stop. We hear, “WELCOME TO HOLLAND.”

Part 2: Uhm, NO!

Medical Issues, Opsoclonus Myoclonus Syndrome

Welcome to Holland

Welcome to Holland

Welcome to Holland is a poem that I have always loved.  It is a different way to look at things when life does not go as planned.  There are 4 of my 7 children who have special needs.  We have dealt with Dyslexia, learning disabilities, Fetal Alcohol Syndrome, Reactive Attachment Disorder, Sensorineural Hearing Loss, Generalized Epilepsy, Functional Neurological Disorder, and Opsoclonus Myoclonus Syndrome.

WELCOME TO HOLLAND

by
Emily Perl Kingsley.

I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this:

Planning a Trip to Italy

When you’re going to have a baby, it’s like planning a fabulous vacation trip – to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It’s all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, “Welcome to Holland.”

Discovering You are in Holland

“Holland?!?” you say. “What do you mean Holland?? I signed up for Italy! I’m supposed to be in Italy. All my life I’ve dreamed of going to Italy.”

But there’s been a change in the flight plan. They’ve landed in Holland and there you must stay.

The important thing is that they haven’t taken you to a horrible, disgusting, filthy place, full of pestilence, famine, and disease. It’s just a different place.

So you must go out and buy new guidebooks. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It’s just a different place. It’s slower-paced than Italy, less flashy than Italy. But after you’ve been there for a while and you catch your breath, you look around…. and you begin to notice that Holland has windmills….and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy… and they’re all bragging about what a wonderful time they had there. And for the rest of your life, you will say “Yes, that’s where I was supposed to go. That’s what I had planned.”

And the pain of that will never, ever, ever, ever go away… because the loss of that dream is a very very significant loss.

But… if you spend your life mourning the fact that you didn’t get to Italy, you may never be free to enjoy the very special, the very lovely things … about Holland.

c1987 by Emily Perl Kingsley. All rights reserved.

 

Medical Issues

What is Reactive Attachment Disorder?

 Fetal Alcohol Spectrum Disorder

What is Reactive Attachment Disorder?

What is Reactive Attachment Disorder? RAD is a condition in which individuals have difficulty forming loving, lasting

relationships. Let me tell you; this is HARD. Seemingly, on the outside, things look great. However, at home, it is like living in a nightmare. Sadly, this is a nightmare you do not ever wake up from. Sometimes, it can be manageable. For instance, medication for moods and sleep can help sometimes. However, their body starts building resistance to medications, so trial and error become the norm.

Some General Traits

Often have a nearly complete lack of ability to be genuinely affectionate with others.

Typically fail to develop a conscience and do not seem to trust.

Do not allow people to be in control of them due to this trust issue.

They can be surface compliant for weeks if no loving relationship is involved.

However, with strangers, they can be incredibly charming and appear loving.

Uneducated adults misinterpret this as the child trusting or caring for them. If they cannot trust and love their own family that loves them, they will not trust and love a casual acquaintance.

They do not think and feel like an average person.

Some famous people with RAD

Hitler

Saddam Hussein

Edgar Allen Poe

Jeffrey Dahmer

Ted Bundy

Helen Keller

Isolated type, Predominant feeling is Sad.

1. no friends

2. no touch

3. verbally compliant, actually defiant

Evasive type, Predominant feeling is Fear.

1. clingy

2. fake

3. charming

4. chatter

5. chameleon

Defiant type, Predominant feeling is Rage.

1. cruel

2. charming

3. self-absorbed

4. destructive

Bizarre type

1. act crazy

2. constant noise

Causes

Any of the following conditions occurring to a child under 36 months of age puts a child at high risk for developing RAD:

~Maternal ambivalence toward pregnancy

~In-utero trauma, drugs, alcohol exposure

~ Abuse

~Neglect

~Sudden separation from the primary caregiver

~Undiagnosed or painful illness such as colic or ear infections

~Inconsistent or inadequate daycare

~Chronic maternal depression

~Several moves and/or placements

~Unprepared mothers with poor parenting skills

Attachment Disorder Symptoms in Children

Superficially engaging & charming

Lack of eye contact on parents’ terms

Indiscriminately affectionate with strangers

Not affectionate on parents’ terms

Destructive to self, others, and material things (accident prone)

Cruelty to animals

Lying about the obvious (crazy lying), Confabulation

Stealing

No impulse controls

Learning Lags

Lack of cause and effect thinking

More Issues

Lack of conscience

Abnormal eating patterns

Poor peer relationships

Preoccupation with fire

Preoccupation with blood & gore

Persistent nonsense questions & chatter

Inappropriately demanding & clingy

Abnormal speech patterns

Triangulation of adults

False allegations of Abuse

Presumptive entitlement issues

Parents appear hostile and angry

Attachment Disorder Symptoms in Infants

~Does not use crying appropriately to get someone to address needs

~Often does not settle when Mom meets needs

~Overreacts or often startles to touch, sound, and/or light

~Listlessness with no medical reason

~Limited holding onto or reaching for a caregiver

~Lack of appropriate stranger anxiety between 6 and 9 months of age

~Shows minimal interest in interacting with people

~Does not smile back or respond with activity to smites or baby talk

~Often does not follow human movement with their eyes

~Avoids eye contact

~ self-abusive behavior

~Is resistant to cuddling

Great Quotes

When your brain works right, so can you. When your brain doesn’t work right, neither can you.” Daniel Amen, M.D.

“Experience changes the brain,” Bruce Perry, M.D,

Attachment is at the heart of all human endeavors.” Bruce Perry, M.D.

“Traditional therapy is useless for severely traumatized people, but especially children because it does not reach the parts of the brain that were most impacted by trauma.” Bessel van der Kolk. M.D.

Complex (reactionary mind/brain stem) Survival mode

Fight – Defensive, and tantrums, argues, negative.

Flight – Runs away, hypervigilant, stress-filled, anxious

Freeze- Shuts down emotions, shuts down learning, disassociates

Talking:

Talking is the first area in which a child must gain self-control to begin healing.

Lies

Dumb questions

Unclear Speech

Jabbering

Swearing

Not answering

Why?

Arguing

I don’t know

Not accepting responsibility

Interrupting

Whining

Consequences vs. Punishment

Punishment turns thoughts to the outside of the child.

Consequences turn their thoughts inside.

Dramatic Displays:

Children must be kept close until they no longer need an audience to manipulate.

Flipping the bird

Overdramatic

Pity Parties

Fit Throwing

Aggression

Eye Rolling

Excretions:

The child must be 100% responsible for cleaning up their excretions after age five.

Urine

Feces

Flatulence

Vomit

Nasal Discharge

Spitting

Food Issues:

On the one hand, you can’t make them eat it. On the other hand, you can’t make them stop eating either. Sadly, they have to learn to control themselves. A parent’s obligation as the nurturer is to provide nutritious meals three times a day.

Hiding food

Eating too much

Not eating

Picky eating

Eating rudely

Eating weird things

Friends and Family:

Relationships must begin between the mother and child. Second, generalize to the father. Third, to the family. Fourth, to the community. Lastly, to the world.

Peer relationships

Siblings rights

Abusing other kids

Setting up

Tattling

Pets

Prescribing the Problem:

When it’s not harmful to the child, pick your battles. For instance, one avenue of intervention is prescribing the problem.

Chewing clothes

Chewing hands

Thumb sucking

Biting nails, lips, toes

Cracking knuckles

Picking boogers

Picking scabs

Masturbating

Crying wolf

Refusing medication

Nutrition

Allergies

Bedtime Issues:

Children must sleep 10 to 12 hours a night with no light in the room. On the other hand, adults need to sleep 8 hours a night with no light on in the room.

Setting alarm off

Not going to bed

Noise at night

Getting them up in the am and dressed

Restitution /Respite/Responsibility

~Restitution for stolen or intentionally stolen items should be double the item’s replacement value.

~It is the child’s responsibility to fill in the hole they dig with their inappropriate behaviors. The way they fill it in is by paying back with their time, their talent, or their energy.

~Stealing

~Running away

~Knives/weapons

~Destroying property

~Sabotaging fun

~Hygiene

From Others Toward Parents:

~Sometimes, we have to say No

~No, I won’t put my child in harm’s way by giving them freedoms they can’t handle.

~Parenting too tough, Nazis

~Not strict enough

~Munchhausen, Histrionic, Borderline, etc.

~Bad parent

~ Don’t like/love child

~Scape-goating child

~Try harder

~ love him more

Support Ideas

Realize this is a very painful situation. If you are on the Mom’s side, you are on the child’s side. Sadly, if you take the child’s side against the Mom, they both lose.

Equally important, listen with open ears and hearts. For instance, you should not judge or be critical. Again, condemning, criticizing, or blaming Does Not Help to Lift the burden, don’t load it down.

Make short, loving phone calls (occasionally) to listen and encourage, not to advise, gather information, or “check on them”- Tell her she can chat whenever she needs an ear.

Finally, do Not give unasked-for advice.

Take all information as confidential.

It is beneficial to educate yourself about Attachment Disorder.

**** Do not say, ‘Let me know if I can help.’ Do something to help.****

Practical Ideas

1. Take her to lunch or dinner.

2. Rent a funny movie and share it.

3. Send her flowers, chocolate, or cards with love and a smile.

4. Bring her some dinner or baked goods,

5. Hugs are always heading. Moms need 12 a day minimum.

6. Pray for them.

More Ideas

Run errands to help lessen the load,

Take the kids somewhere for the afternoon. Be sure she knows it’s because she deserves a break and not because she can’t handle it.

Consider giving her a gift certificate for a massage, manicure, or hair salon.

Give her Mozart’s music or some other calming or uplifting tunes.

Give her a good book.

Buy her bubble bath and watch the kids for an hour or so while she soaks to music.

Remind her of her special traits and talents.

Tell the child often, in front of her, how lucky they are to have a mom like this.

Never show up without calling to check for an appropriate time to visit.

Never tell her to “Just love the child more.” If you already have, beg forgiveness for not understanding.

Families by Design

 

Adoption

How to Heal a Fractured Family

How to Heal a Fractured Family

How to Heal a Fractured Family

How to Heal a Fractured Family. The short, simple answer is to trust in Jesus. Yet, sometimes, that is hard for me. Our family has been fractured for a long time. There have been cracks here and there, but this year, it is different. I’m not going to lie; it has been a struggle. Since 2014, but even before then, due to some extenuating circumstances. I don’t want to discourage anyone from adoption, but there is so much more I know now than I did almost 14 years ago.

What You Need to Know

When people are in the process of adopting a child or children, it is an exciting thing. We do all the things that are required. You have to do background checks, have money in the bank, fundraisers, fingerprints (if international), and so on. We work hard on those dossiers. Our homes are spotless for our home study. We eagerly anticipate our referral or a picture. There are so many support groups where we talk about our discouragement of NOT getting a referral quickly enough.

What We DON’T Realize

Is that we are waiting for a family to fail in some way. If it is foster care, we are waiting for a family to abuse, neglect, or hurt a child or children so they will be placed in the system. Then we jump through all the hoops. For the next 17 out of 23 mths, we will wait for the termination of parental rights.

Or, if it is a newborn, we are waiting for a sweet birth mom to make the most difficult decision of her life. Her life will be altered forever by choosing the blessing of adoption. If international, we are waiting for a birth parent who may be dying, the child is starving, or some other tragedy that places them in an orphanage.

When you adopt a family member’s child, you are waiting for drugs, alcohol, abuse, neglect, or abandonment. There are other circumstances, too, but that was my circumstance for my son. You start looking at YOUR sister and think…she is my son’s aunt? Grandmother? Both?

The Dark Side

We are walking into the blackest chapter of our children’s lives. Our greatest joy as an adoptive family and what we worked so hard towards will come at our children’s most tremendous loss. Whether an infant or an older child, that loss will forever be embedded in their brain and heart. They are the only ones who have heard their mother’s heartbeat from the inside out, and your heart is not the same.

My heart aches because, in a perfect world, my kids would still be with their birth families. Succeeding, thriving, living, loving, and yet because of certain things, they are not there. They are with me. I am grateful. Indebted. I am forever changed because they grew in my heart, not under it!

They will always wonder what it would have been like if they had stayed with their nuclear family. They have been raised by their birth parents or in their birth country. Try explaining all of the things when they are older. It’s super fun, aka traumatic.

Getting It Straight

I do not regret any of my children. None of them. They are my joy, and I’m so thankful to God that He wove my family together beautifully and intricately.

But

Trauma is an awful thing. Plain and simple. Talk to ANY adoptive parents, and they will tell you the same thing. Trauma can come in all shapes and sizes. It can come with a list of diagnoses, and then there is “traumaversary” That leads to sabotage of all good things, behavior issues, confabulations, deceit, manipulation, and so much more.

My Family is No Different

We have, and continue to have, all of the above things and the “so much more” times a million. What started as one child exhibiting out-of-control behaviors due to FASD, PTSD, RAD, blah blah blah trickled down to other children. Another child was exhibiting similar yet different behaviors. Then, a third child goes above and beyond. Lastly, the fourth child struggles with anxiety and more.

It has wreaked havoc on my person. My husband, other children, and even my pets will lose hair when life is escalated in my home. Sadly, this usually occurs November-March and then in July-October; as I look at that typed out, it is from October-July. That gives us two mths trauma-free.

All the Things We Have Tried

We have done the things. Doctors, specialists, therapists, counselors, pastors, family, medication, no routines, homeschool, private, public; All. The. Things. One child, nothing has worked for that child. Another child, we hope, is in the process of healing. The third child is excited right now. The fourth child, we deal with it day by day.

I am exhausted. My husband is tired. Honestly, even the kids are tired. Mix all this crap with a pandemic and being in this house, and you have Funville. My underwear drawer no longer holds underwear. It is stocked FULL of candy. I wake up, in the morning, with a bag of snickers under my arm and wrappers everywhere.

There is a newfound love of Limeade Slushes. My teeth are going to rot out of my head. I have become a human GPS because I take LONG drives on roads I have never heard of or driven. My favorite pastime is driving to my neighbors and seeing if their pig is in the front yard. I cry; a lot.

Falling Apart

Sadly, I feel like my family is falling apart. That Scripture of satan lurking around the corner to devour my family is happening! Honestly, at warp speed. I have so many words. So much has happened that my fingers will not move as fast as my brain.

I am praying that this pandemic ends. I am praying for healing for my medically fragile children. Salvation for two of my kids. Wisdom with all of them. Healthy delivery for one (going to be a granny!) A healthy relationship for two kids. School to open for one. One to come home safely. Another is to stop making REALLY poor and dangerous choices.

I want my family to heal and to be whole. I want God to intervene and DO SOMETHING. Honestly, I am just ready for Jesus to come riding down on His white horse and take us all home. Home, where there is no sadness, no darkness, or pain. Just glory.

God is Bigger

I have to trust in that. Right. Yes, trust. The hardest thing for me to do is trust Him with my family. Maybe that, alone, needs to be my prayer. Lord, let me trust that You have plans to prosper and not harm my family. Help me realize that You and only You can heal the fractures.

 

Adoption, Life or Something Like It

An Apology Without Change is Manipulation

An Apology Without Change is Manipulation

An Apology Without Change is Manipulation

Gracious, this is such a reminder of what I live with daily. It is so hard when you have such consistent, horrible things said to you and then a fake apology. That is exactly what it is. Fake. I probably have done that, but I learned to be sincere with my apologies. When I do something wrong or hurt someone unintentionally, it hurts me so badly. An Apology Without Change is Manipulation. Simple as that.

It Was Not Her Fault

There was an issue with an acquaintance, and though that was the straw that broke the camel’s back, it was not her doing anything wrong. I was just emotional. Yet, this is one isolated instance. I was not manipulating her, and I was sincere in my apology.

Now for my family member, this is a different ball of wax. This member has many types of diagnoses. Part of me thinks that this individual cannot help it. They do something wrong, have a hollow apology, and then do the same thing 10 minutes later.

It is almost to the point where I don’t want an apology. I want this person to leave me the heck alone. Can we say BOUNDARIES? I do not have boundaries, but they certainly need to be established.

Kids with Reactive Attachment Disorder

They do this quite often. In this quote, kids with RAD are good at manipulation, Confabulation, and triangulation. According to Webster’s Dictionary, to manipulate means to control or play upon by artful, unfair, or insidious means, especially to one’s advantage.

Confabulation means filling in gaps in memory by fabrication. To “normal” people, this means to lie. Then triangulation means allying. In this situation, it is a child with one parent against another parent.

It is all exhausting and makes my brain work on overload. My boundaries had to be firmly placed, though they broke my heart into a million pieces. I had to take into consideration other family members and myself.

The stress was hurting all of us.

Life is Hard

The Lord did not promise us a walk in a rose garden. If we had that or all the answers, we would not need Him. He completes and sustains us even when we are physically, emotionally, and mentally exhausted from creating those hard boundaries.

He gives us the wisdom we need when we seek it, to “speak” to us. For me, this is done through intuition, Scripture, other people, and dreams. I have learned to accept that my family member does not understand what it means not to manipulate and to be sincere in the apology.

It is hard. Completely and totally. Maybe one day, the Lord will heal her mind, body, and spirit to where she can function well in the world around her.