Tag: trusting God in uncertainty

Faith Journey, Medical, Opsoclonus Myoclonus Syndrome

With Every Joy, In Every Hope

Brandi C

With Every Joy, In Every Hope

This journey with OMS has brought me to my knees more times than I can count. It has stretched me, refined me, broken me open—and built something stronger in its place. However, With Every Joy, In Every Hope there is Jesus.

There have been days filled with fear. With doubt. With exhaustion that sank into my bones.
But there have also been days of joy.
Joy that surprised me. Joy that snuck in quietly and wrapped itself around the hardest moments.

And that’s what I’ve learned: joy and hope can live alongside pain.
They’re not emotions reserved for the easy days.
They are gifts from God, woven right into the messy middle of the story.

With every joy—in every smile, every step forward, every laugh that returned after weeks of silence—I saw God’s fingerprints.
With every hope—in every prayer whispered through tears, in every night I chose to believe again—I saw God’s faithfulness.

This journey hasn’t been linear. Healing rarely is.
There were setbacks, victories, and there were days I felt like giving up.
And then there were days when I couldn’t help but praise—because of the progress, because of the peace, because God had carried us one more step forward.

With every joy, in every hope, God was there.
Not one moment missed, not one tear wasted, and Not one prayer unheard.

And maybe you’re in a hard season of your own—maybe your story doesn’t look like mine, but your heart still needs to know:
Joy is still possible. Hope is still alive.
Not because of the outcome, but because of Who walks with you.

💛 If you’re navigating life’s hard places and need a safe space to heal, grow, or just breathe—Circle of Hope Counseling Services is here for you.

We offer trauma-informed, faith-filled therapy for individuals, couples, and families.

📞 Reach out today to schedule your first session (KY residents only) or learn more: Circle of Hope Counseling Services.

You don’t have to walk this journey alone. Hope starts here.

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Faith Journey, Medical, Opsoclonus Myoclonus Syndrome

The Shaking Doesn’t Stop

Brandi C

The Shaking Doesn’t Stop

The Shaking Doesn’t Stop

The Second ER – Misdiagnosis #2

We made arrangements for the kids, packed bags, and headed 2.5 hours to Nashville. We arrived at Vanderbilt Children’s Hospital in the middle of the night. In the end, The Shaking Doesn’t Stop.

They admitted us briefly but said no MRI could be done until morning.

They ran bloodwork and later completed an MRI. I asked for a spinal tap or spinal MRI—they declined. “Not necessary,” they said.

While we waited, new symptoms began to show up. H stiffened his legs like a toy soldier. He shook all over. He couldn’t sit up without help.

The MRI showed nothing. We were told it was Acute Cerebellitis Ataxia, likely caused by a virus—even though he had never been sick.

“Is anyone among you sick? Let them call the elders of the church to pray over them…”
— James 5:14a (NIV)

We were told we must have just not noticed when he was sick. I was stunned.

He is three.
A blind, deaf, mute would know when a three-year-old is sick.

We were told to return if he had a grand mal seizure or if we feared for his life.

Discharged – But Not Done

What I’ll never forget is how flippantly the doctors treated us—how dismissive they were. But what I will remember even more clearly is the nurse who looked me in the eyes and said:

“You don’t have to leave. I can’t believe they’re discharging you, given the state he’s in.”

We knew then—we needed to keep pushing.

“Let us not grow weary of doing good, for in due season we will reap, if we do not give up.”
— Galatians 6:9 (ESV)

The Third ER – Misdiagnosis #3

Still unsettled, I packed up again and drove 3.5 hours to Louisville. I wanted one thing: confirmation.

If two doctors gave me the same diagnosis, I’d accept it and wait.

Big Daddy stayed home with the others. I was hopeful that this time, we’d get real answers.

But even when the world throws labels and shrugs its shoulders, a mother’s gut—and the Holy Spirit—won’t be quieted.

Heartbeat Moment: When the Shaking Begins

That June evening, I had watched H giggle and shout with joy at a ball game. One day later, I watched him crumble under the weight of something we couldn’t name. But in between the popcorn and the panic, I felt something deeper growing—a fire, a knowing.

We weren’t just walking through a medical crisis.

We were walking through holy ground.

And even when we didn’t know the name of what we were fighting,
God did.

“Before they call I will answer; while they are still speaking I will hear.”
— Isaiah 65:24 (NIV)

💛 If you’re navigating life’s hard places and need a safe space to heal, grow, or just breathe—Circle of Hope Counseling Services is here for you.

We offer trauma-informed, faith-filled therapy for individuals, couples, and families.

📞 Reach out today to schedule your first session (KY residents only) or learn more: Circle of Hope Counseling Services.

You don’t have to walk this journey alone. Hope starts here.

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