Dear Special Needs Mama, I don’t know your name, but I know your heart.When I look at you, I see the bags under your eyes and the fear behind your smile.I hear the weight in your silence when someone asks, “How are you?” I’ve been there. Maybe you're still in the ER. Still waiting for… Continue reading Dear Special Needs Mama
Tag: parenting medically complex children
When the Protocol Doesn’t Work
When the Protocol Doesn’t Work – Living Outside the Lines in the OMS World. In the world of Opsoclonus Myoclonus Syndrome (OMS), few names are as respected and recognized as Dr. Michael R. Pranzatelli. His work changed the trajectory of care for children like my son, H. He devoted his life to researching OMS and founded… Continue reading When the Protocol Doesn’t Work