Faith Journey, Medical, Opsoclonus Myoclonus Syndrome

Dear Special Needs Mama

Dear Special Needs Mama

Dear Special Needs Mama – A Letter from the Fire

Dear Special Needs Mama,

I don’t know your name, but I know your heart.
When I look at you, I see the bags under your eyes and the fear behind your smile.
I hear the weight in your silence when someone asks, “How are you?”

I’ve been there.

Maybe you’re still in the ER. Still waiting for someone to say something—anything—that makes sense.
Honestly, maybe you’re deep into the battle and just need someone to tell you you’re not crazy.
Maybe you’re watching your child suffer and wondering if you have what it takes to keep going.

You do.


You’re Not Failing

Remember, you’re navigating a world most people can’t even imagine.
You’re balancing meds, therapy, paperwork, appointments, insurance, and everyone else’s expectations.

You’re not weak.
My friend, you’re a warrior.


It’s Okay to Cry

You don’t have to hold it together all the time.
And you don’t have to explain everything to everyone.
You’re allowed to feel overwhelmed.

But don’t forget—you’re also allowed to feel joy.
Even here. Even now.


“God is within her, she will not fall; God will help her at break of day.”
— Psalm 46:5


From Me to You

If no one has told you lately:

I’m proud of you.
You are not invisible.
And you are not alone.

You are doing holy work.
And even on the days that break you…
You are still enough.

With love,
A mama in the trenches
Who believes in miracles
And still cries in her car while drinking coke lots sometimes

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