Faith in Hard Places, Medical, Opsoclonus Myoclonus Syndrome, Parenting

The Day He Ran was Our Beach Miracle

I can still feel the sand under my feet and I can still remember The Day He Ran. Our Beach Miracle. The sun was setting, the breeze was just right, and we were finally on a family vacation, sort of, after what felt like a lifetime in hospitals. H sat on a blanket, watching the… Continue reading The Day He Ran was Our Beach Miracle

Faith in Hard Places, Medical, Opsoclonus Myoclonus Syndrome

“Being Brave” — H’s Story in His Own Words

Some stories are best told in the words of the one who lived them. Here is “Being Brave” — H’s Story in His Own Words. It’s been almost eight years since the day H’s world changed—and ours along with it. So much of that journey has been shared through my perspective as his mom, advocate,… Continue reading “Being Brave” — H’s Story in His Own Words