Faith in Hard Places, Medical, Opsoclonus Myoclonus Syndrome

New Beginnings are the End of One Chapter and the Start of Another

New beginnings. They carry a quiet kind of hope which is soft, steady, and full of promise. Today is the last day of June, and with it comes a shift. This is the final post I will write about our journey with Opsoclonus Myoclonus Syndrome (OMS). It’s not the end of the story, but it… Continue reading New Beginnings are the End of One Chapter and the Start of Another

Faith in Hard Places, Medical, Opsoclonus Myoclonus Syndrome

When the Doctor’s Told Me There Was No Hope

I will never forget the day a doctor told us, “There’s no hope.” Not in those exact words, maybebut close enough. The weight of it settled like a stone in my chest. My son, my precious, brave boy, was facing Opsoclonus Myoclonus Syndrome. Suddenly, it felt like the world was holding its breath. When the… Continue reading When the Doctor’s Told Me There Was No Hope