New beginnings. They carry a quiet kind of hope which is soft, steady, and full of promise. Today is the last day of June, and with it comes a shift. This is the final post I will write about our journey with Opsoclonus Myoclonus Syndrome (OMS). It’s not the end of the story, but it…
This journey with OMS has brought me to my knees more times than I can count. It has stretched me, refined me, broken me open and built something stronger in its place. And with every joy, in every hope, there is Jesus. There have been days filled with fear. With doubt. With exhaustion that sank…
I will never forget the day a doctor told us, “There’s no hope.” Not in those exact words, maybe but close enough. The weight of it settled like a stone in my chest. My son, my precious, brave boy, was facing Opsoclonus Myoclonus Syndrome. Suddenly, it felt like the world was holding its breath. When…
When my son was diagnosed with Opsoclonus Myoclonus Syndrome (OMS), the world shifted beneath our feet. It was one of those moments that divides life into before and after. Fear came crashing in, and the questions outnumbered the answers. The only phrase that permeated through my life was “Hold On to Hope.” In the middle…
There’s something uniquely painful about being told a hundred different things, only to be left holding nothing solid. H’s journey has been filled with more questions than answers and more misdiagnoses than I care to count. This is a small snippet of what it took to finally land on something we could name. But even…
There’s something about this verse that stops me in my tracks. Even when there was no reason for hope… Abraham kept hoping. Why? Because God had said. I was told there was no hope in my son living, however, Even When There Was No Reason for Hope. This isn’t blind optimism. This isn’t wishful thinking….
A Journey of Faith, Fear, and Finding God in the Chaos 8 Years Ago Our Lives Changed, our world shifted in a way we never saw coming. Our youngest son had just turned three, and life felt beautifully ordinary summer evenings at the ballfield, laughter echoing through the house, and a rhythm that felt familiar….
In the month of June, I’m leaning into something I’ve long put off and that is sharing more of our story, the unfiltered version. Eight years ago, our lives were flipped upside down when our youngest son was diagnosed with Opsoclonus Myoclonus Syndrome (OMS), a rare and often misunderstood neurological disorder. It’s a journey that…
As a therapist, I have had many clients walk into my office carrying the weight of multiple diagnoses. Some were given by different providers. Some were self-diagnosed after hours of online research. Some may have been accurate at one point but no longer seem to fit the person sitting in front of me. That matters…