New beginnings. They carry a quiet kind of hope—soft, steady, and full of promise. Today is the last day of June, and with it comes a shift. This is the final post I will write about our journey with Opsoclonus Myoclonus Syndrome (OMS). It’s not the end of the story, but it is the closing… Continue reading New Beginnings: The End of One Chapter, the Start of Another
Tag: Parenting Through Illness
With Every Joy, In Every Hope
This journey with OMS has brought me to my knees more times than I can count. It has stretched me, refined me, broken me open—and built something stronger in its place. However, With Every Joy, In Every Hope there is Jesus. There have been days filled with fear. With doubt. With exhaustion that sank into… Continue reading With Every Joy, In Every Hope
When the Doctor’s Told Me There Was No Hope
I will never forget the day a doctor told us, “There’s no hope.”Not in those exact words, maybe—but close enough. The weight of it settled like a stone in my chest. My son—my precious, brave boy—was facing Opsoclonus Myoclonus Syndrome, and suddenly, it felt like the world was holding its breath. When the Doctor's Told… Continue reading When the Doctor’s Told Me There Was No Hope
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