Medical Issues, Opsoclonus Myoclonus Syndrome

3 Years Ago Today

3 Years Ago Today

3 Years Ago Today

At 4:30 pm, 3 Years Ago Today, our lives changed forever.  Opsoclonus Myoclonus Syndrome began to rear its ugly head.  Our lives were altered.  There has not been one person, in our home, that was not affected by this devastating condition.

This day comes and goes, for most people.  In our world, today, we see Co-Vid19, racism, and protests.  It seems like everything is falling apart.  In lieu of those horrendous things, I stop today and give thanks that my son is still alive.

Treatments

In the course of 36 mths, he has had

  • A bazillion IVs
  • 28 IVIG treatments which equals almost 250 hrs in a hospital
  • 2 Lumbar Punctures
  • 3 MRIs
  • 1 EEG
  • A bazillion labs
  • The second highest genetics battery of testing
  • 5 diagnosis’
  • 46 ACTH shots in the thigh
  • Countless high dose rounds of Dexamethasone
  • 3 rounds of Chemo
  • 5 hospitals
  • Countless stays in said hospitals
  • A Make A Wish trip
  • Wheelchair bound for months
  • Gait walker dependent for months
  • Ramp installation
  • Multiple rounds of high/low frequency acupuncture
  • Bioimpedance
  • Amish Iridology
  • A death sentence

My Son

He is a warrior.  This child has been prayed over by hundreds of people.  Donations have helped us travel many miles to seek help.  Many tears have been shed.  Faith has been torn down and redeveloped.  Hope has abounded.  In 2017, our lives changed.  2018, we were given a new diagnosis and told to take him home until he “succumbs.”  In 2019, we got the “old” diagnosis back and were given hope.  Now, in 2020, my baby is not only alive but has graduated from kindergarten and lost 2 teeth.

3 Years Ago Today

How I Feel

My gut aches.  I am physically ill at the pain that he has gone through.  There has been great pain.  No one will ever know what he and I have been through together.  There is a bond that we have because through it all, it’s been Hunter and me.  Bart has been amazing.  He goes when he can.  The support, love, devotion, and still have to deal with other kids and a full-time job.  My children.  Family.  Church.  Friends.

I know Christ died on the cross to heal Hunter.  It just has not manifested, completely in his body.  We still do treatments every month.  He still struggles in some areas and tremors are always there.  We still worry about when he gets sick and a flare-up.  I still carry around the “what-if” guilt.  It is still there and I am now praying for deliverance for that guilt.

My Baby

He is busy.  Mouthy.  He pees on kittens occasionally.  There are still some fits, tremors, eye twitches, and speech issues.  Yet, there are no more rages (praise God), no more ACTH shots, no more OCD (for the most part) issues.  Treatments are easier because he is a pro at getting an IV.  Meds are taken with grace and not a fight.  He is aware that he has OMS and is learning about his condition.

3 Years Ago Today

My baby runs, plays baseball, jumps, dances, and says things like “Taco Tuesday and Hump Day.”  He has changed his name from Hunter to Kid to Mario.  I’m no longer “mom” because that is old, done, gone…I am not Princess Peach.  He apologizes when he is wrong.  Loves to have me smell his hair and say “it smells like rainbows and sunshine” after a bath.

He is alive.  Death from OMS is not in his future.  God has big plans for him and He has allowed me to be front and center.  The phrase God is good all the time and all the time God is good runs through my head.  I never thought I’d be able to say that and mean that again.

Yet…He is good.

3 Years Ago Today

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Amish Iridologist

Reuben Schwartz Info

Reuben Schwartz Info

Well, well, well…lots has happened since I’ve posted.  Here is some Reuben Schwartz Info for people who have questions.  First and foremost, I DO NOT WORK FOR REUBEN.  I get a lot of questions asking to schedule appointments for him.  Honestly, I welcome the questions but do not work for him.  Also, remember this is just MY experience with him. There are several people with several opinions, I’m sure.  The posts I have made on it (I will link them below) is my personal experience.

Reuben Schwartz, Amish Iridologist

To get an appointment, you must either A) show up and hope to be seen but understand he gives first priority to those with appointments B) write him a letter and request a day/time.  They will write back with the appointment they schedule for you.

He is Amish, friends.  There are no phones, computers, or any type of electronic devices that they use.  Also, he is not a licensed physician.  He has learned, through the community and his family, the knowledge of Iridology.  There is no formal education.

He does NOT charge for his service, though there is a donation box on his desk.  The herbs/supplements that he suggests DO COST money.  They are cash only.  What he does not sell, you can get at Mountain Air Herbs, down the hill (not Amish owned) and they do take cards.

Hours/Days and Times of Operation

Reuben Schwartz

1205 Radure Rd.

Hestand, KY 42151

As of March 2018:  Mon,Tues & Fri 7:30-3:00, Sat 7:30-11:00am

Lots to Do

There are lots of little shops set up, along the way.  I highly suggest you take your time and enjoy Amish Country and all the things they make/create/have to offer.  Fresh fruits, veggies, breads, pies…so very much.  It is one of my favorite places to go.  It is a different world.  Such a peaceful place.

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Amish Iridologist In Pictures

Well, I sort of am doing the Amish Iridologist In Pictures.  I do not take pictures of the Amish because they do not want their pictures taken.  This is a respect thing and I choose to honor what they asked of me.

Amish Iridologist In Pictures

We stayed in a little town about 45 minutes from Hestand.  When I requested an appointment, I didn’t specify a time.  I couldn’t have made the trip in a day but they gave me an 8 am appointment time.  The drive is about 5 hrs from where I live, so I spent the night.

Frisked at the Dollar General

I went by myself, on this trip.  Later, we all came.  Our hotel was right behind a huge Dollar General store.  Hunter was not well.  Rages were common.  I had to carry him everywhere.  Potty training was non-existent and I was a bucket of nerves.

I thought I would run into the DG and pick up some food to eat on the way to the Mr. Reuben the next day.  Hunter was hysterical.  I was exhausted.  We got there, with him screaming, I put him in the cart while he was screaming.  Then, he proceeded to crap from stem to sternum.  All the diapers and wipes were in my hotel room.

Never Touched a Thing

I went up one aisle and down another.  Never looked or touched anything.  I couldn’t do it.  Got him up out of the cart, with crap everywhere, him screaming, and my flushed and irritated.  As I walked out the door, the checkout girl asked to frisk me and check my purse.

Anger ensued.  I just looked at her and said I didn’t even look at anything and did she want to smell him or check his crappy diaper or the poop that was smeared all over me?  She checked my purse and said I was fine.  I told her in the morning, she would not be fine because I would be back to talk to her manager.

Conversation

Sure enough, I went back the next morning but my temper had settled.  I told the manager what had happened and she was mortified.  She asked me not to call the corporate office and she would handle that young lady.  I asked her to please not fire her because she was young and probably needed the job.  Luckily, she didn’t though that is what she wanted to do.  Crisis averted.

Peek Inside

Amish Iridologist In Pictures

I am going to keep these pictures larger so I can see what is in them.  This is directly to the right after you walk into the door.  That table has papers for the person to fill out to give to Mr. Schwartz.  On the other side of the desk is the hallway to his office.

Amish Iridologist In Pictures

That giant shelf is across from the tables in the first picture.  This is where they keep some of their homemade goodies that you can buy.  Behind this shelf, is another wall and it has tables set up with more homemade goodies.  All the way to the back is the room where they keep all the herbs and supplements.  If it is super busy, someone sits at the desk you see straight ahead and there are 2 other desks to the left.  This place can get packed quickly.

Peering Out the Window

Amish Iridologist In PicturesAmish Iridologist In Pictures

The house looks relatively new!  It is nice.  There is a full-length front porch with rocking chairs on it for the overflow.  It is out in the middle of nowhere and on a gravel road.  If you are looking straight at the front porch, to the left is the main road.  To the right, there is a garden and a place for the horse and buggies.  If you keep going down the driveway, you will run right into Abraham’s farm.  He is one of Reuben’s 12 children.  Lovely man.  He does leatherwork.

Getting in Contact

You must write a letter to Mr. Schwartz. Expect a reply back within a couple of weeks.  If you want a specific day/time, put that in your letter.  You do not have to go into detail about what is wrong, it isn’t necessary.  They handwrite you a letter back.  You can just show up but if he is booked with appointments, he will honor those first.  They do not work over, so be aware of the hours!

Reuben Schwartz

1205 Radure Rd.

Hestand, KY 42151

Money

They take cash only!  Be aware and bring around $300.  I’m not saying you will spend it all but it is better to have it if you need it.  There are some herbs/supplements that he doesn’t have.  He will mark that on your sheet of information.  You will go down the hill to Mountain Air Herbs.  They can complete your order.  Mountain Air Herbs is not run by the Amish, but they do help Reuben out. They do take credit cards!

Please Note:

I cannot and do not make appointments for them.  We have simply been there 2 times.  Once for Hunter and me.  The second time, we brought all of our children.  I am happy to answer any questions that you might have.

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I get a lot of hits (searches) for Amish Iridology and Reuben Schwartz.  With the amount that I get, I thought I would do a follow up on him.  I will also link below, in Related Posts, the past things I have written.

As always, you are more than welcome to send me specific questions to barefootfaithjourney@gmail.com.  I try to answer all emails as they come in unless they go to spam.  If you do not hear back from me in a few days, please resend the email.  Life happens, ya know!

Introduction to Mr. Schwartz

I had heard of an Amish Doctor many many years ago from a friend.  Her husband had gone and they were planning a follow-up trip.  She knew that my husband suffered from knee pain (bone on bone).  She offered to get the cream that he has, at his office, and bring it to me to see if it would help.  My husband thought it was crazy, tried it for a few days but he was not consistent with using it.

That being said, I let the knowledge of Reuben Schwartz flee my mind.  However, the Lord had already planted that seed.  Clearly, I had no plans to have a medically fragile kid.  To have a kid with Opsoclonus Myoclonus Syndrome, ya know.  I mean, that was not my #1 goal in life.

Then Came my Brother

One day, as I was driving home from who knows where I got a call from my brother.  I won’t give much (any) backstory regarding my brother.  Just know, that he doesn’t usually call me.

My first thought was that someone had died or something was wrong.  Sad, I know.  Luckily, the Lord has done a mighty work in this relationship, now.  Anyway, he LOVES Hunter.  I mean…loves loves LOVES him.  Due to that intense love, he is always listening/reading/wondering how he can help him.

The Phone Call

He was recanting some information that he read and things he thought might help.  I told him that we had tried some of the things he suggested but some we had not.  Then he said that he heard of this Amish guy that has helped people.

That sparked my seed!  I asked him if he were referring to an Iridologist and he said yes.  After many years, my spark of knowledge was getting brighter.  I told him I would call my friend and see what she could tell me.

Calls and Research

So, I called my friend and we talked a bit.  It had been so long, she had forgotten but shared what she was remembering.  Then, I hit the internet.  There are a lot of blogs out there with people with experience with him.  Some are good, some are not good.  That is typical.

At this point, my son was barely walking.  We were doing IVIG, Rituximab, ACTH shots, and all the things.  We had also been to St. Augustine to SonRidge Health and Healing Center.  I mean, I have already stepped out of the box with Dr. Monahan.  In my head, why not do it again.

Open-Mindedness

When we pulled up to the building, my GPS ended up taking me ALL the way down the driveway.  If you do that, you will meet Abraham.  He is one of Reuben’s 12 children.  He lives in that big ole house with his wife and children.

So, as soon as you turn in, the building will be on your left.  It is a newer house.  I enjoyed talking with Abraham 🙂  Once I got there, I had a bit of paperwork to fill out.  Clearly, he knew nothing of my son’s condition.  He doesn’t diagnose things like that.  Since they have no contact with the outside world, then there was no researching.

Once There

You go in and fill out a small bit of paperwork.  They also sell loaves of bread, herbs, spices, and other things so it is fun to look around.  It isn’t a big place, but there is a beautiful full-length front porch you can sit on!

When we got back there, Mr. Reuben said he didn’t know about all the things that I had written about.  Duh.  I was stupid for even writing it all.  It just made me feel better.  He is about 6 ft with a white beard and he smells like melaleuca and love.  His eyes were so kind looking and so was his sweet smile.

Our Discussion

I asked how he got into Iridology and he was happy to explain it.  Iridology has been around for years.  He had seen his great grandfather and grandfather look into people’s eyes and help them.

He thought it was witchcraft but he started seeing people become well.  From that point on, he decided to learn from all he could about the practice.  He was seeing it all add up to a point that he could not deny.  It must be said, he LOVES Jesus, which warms my heart.  One of his sons is in the practice, now.

Something to Note

Reuben is NOT  a medical doctor.  He does NOT prescribe conventional medications.  Also, he does NOT tell you to stop the meds you are on!  He will listen, give advice, talk about diet, and prescribe herbal supplements in liquid and pill form.  Everything he has comes from the Earth.

What he does not have, in his place, you drive down the hill to Mountain Air Herbs on Radure Rd.  If you need herbs or such delivered, you can call 270-487-1334.  They are NOT Amish at Mountain Air Herbs but they do work with Reuben.

The Process

Once in the little office, he gets his crucible and his utility flashlight and gets all up in your personal space.  He looks into your eye and then marks things down on a sheet of paper.

Everything that he saw in Hunter was the exact same thing that we found in his bio-impedance scan.  I was dumbfounded.  Parasites were the main cause of the deterioration of his body.  The whole visit is probably 15 minutes unless you stay and chat like I did.

Our Conversation

For me, he looked at me (again he knew NOTHING about my history) and this is the conversation we had:

Reuben:  “You don’t have a uterus do you?”

Me:  “No sir, I don’t.”

Reuben:  “You still have your ovaries, don’t you.”

Me:  “Yes, sir, I do.”

He pushed back his chair and looked at me with this look of I don’t really want to tell her what I need to tell her.

As he sat there, he looked at me again and started making a motion around his stomach.

Reuben:  “Your ovaries are angry with you.”

**I burst out laughing.  He was so serious.**

He then went on to ask me how my moods were, depression, sleep habits and said that he would give me something to make my ovaries happy again.

Costs

The visit is free, but he does have a donation box on his desk.  The herbs/supplements/pills are not.  They can be quite expensive.  The containers they are in are reusable if you choose to make another trip to refill.  Some you do have to buy the whole thing, but others you can just take your empty bottle and you fill it back up.  Mountain Air Herbs is all at cost.  They are very kind and they have so much stuff.  I mean, so much stuff!

Just a quick FYI, the supplements are fine but the liquid is HORRIBLE tasting.  I put Hunter’s in applesauce to help him choke it down.  Now, Reuben can down it like a pro…much like how I eat cheese.  I’m not that big of a man.

Reuben’s Contact Information

Write a letter and just ask for an appointment.  Realize there is NO telephone, internet, computer, cell phones, nothing.  So, once you write the letter and ask for an appointment, they will send you a letter back with a date.

Funny enough, I wrote out this LONG letter detailing everything for him.  I wanted him to know all the things.  In return, I got a one-line letter giving me a time and date.  I thought that was pretty funny.

As of March 2018, his hours of operation are as follows:  Mon, Tues & Fri 7:30-3:00, Sat 7:30-11:00am

Reuben Schwartz

1201 Radure Rd.

Hestand, KY  42151

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On the Road Again

Reflecting on our Amish Iridologist Reuben Schwartz.  Here we go, back to the Amish Iridologist Reuben Schwartz, so he can Look Deeply Into My Eye.  As we travel back to Hestand, KY, we meet up with Dr. Reuben Schwartz.  I’m so thankful that the trip is not too long, about 4 hours.  I had packed Hunter’s bag the night before.  We had the staples, of course.  I had a few pullups, wipes, a baggie, some extra clothes, 3 stuffed animals, a banana, some gluten-free snacks, and 2 movies.  I had told the kids to do their chores before bed, to prevent yuckiness in the morning.  It was also required, that they all bathe cause…well, they are kids and they smell.

Preparing

Once morning rolled around, kids ate quickly and got dressed.  We hoped in the van and once we were on the interstate, we popped in a movie.  Big Daddy drove, I slept, kids watched a movie.  It was a good set up.

Due to the MASSIVE amounts of road construction and the fact that Dr. Reuben is out in the middle of nowhere (quite literally), we were 15 minutes late.  They were waiting on us because it was inching closer to dinner time and they do not miss their dinner.

His son was there to help, so he took the boys to one room and I had Hunter and Grayce with me.  Mr. Reuben did his thing.  He got his little crucible and his utility flashlight and he edged all up in my personal space.  The man smells like Melaleuca and love, I kid you not.  His eyes are bright, his clothes are fantastic, and his white beard with those piercing blue eyes…..oh, and that smile.  He is so engaging and friendly (and honest).  It has been such a joy getting to know him.

The Results are In for the Kids

G:  He said her “rages” were because her left ovary was not very nice LOL.  He saw, in her eye, the issue she has had since before she came to us.  He even found her pneumonia that she had before she came to us.  Apparently, there is scarring from it.  Her thyroid is causing her weight to be out of control and stress.

N:  Stress, thyroid, adrenal gland, digestive system, and drink more water!

D:  Stress, digestive issues, and heart issues.  This is probably a biological factor, as Dr. Reuben’s son asked if we had heart issues.  We had to, quietly, explain our family dynamics.

J:  This boy.  Well, there is stress, digestive stuff, not enough water but he was told to “lay off the sodas.”  We laughed and said that he doesn’t drink anything but water and milk.  They see pre-diabetic stuff going on in him.  I had to have Dr. Reuben look at him because I told him Ethiopians do not have diabetes and he is only 12 and something wasn’t seen correctly.  Reuben saw the same thing, so we are going to be making a follow up with his pediatrician to check his blood work.  Mama is not even playing.

Big Daddy and Me

Big Daddy:  He asked him how his joints were (collective laughter as we all know how bad his knees are).  He asked him how his stress was, he nailed his thyroid, the fact that he does not drink enough water or that he eats too much red meat.  He also laid out the issue with his heart.

Me:  Once Dr. Reuben got all up in my stuff, he slid on back in his chair and said: “good grief, you are under tremendous stress.”  I told him I was fine and what made him think I was stressed.  He laughed and said, “Your eye is telling me you are under stress.”  I told him of my past 2 weeks where every night, I have been consumed in pain.  I either start vomiting or have diarrhea.  He said that it was straight-up stress.  He said we needed to calm my body down.

Stress

I find it eye-opening that all my kids (and us) had stress show up in their eyes.  This past year has been nothing but a stress ball for us.  I don’t think I have considered the effects of Hunter’s condition has had on the children.

How sad, as a mom, I did not recognize that.  We are all going to have to sit down and have a family meeting to address this.  Our family may need to step back from the few things that we do, in order to see to the mental health of our crew.

I know that I have a lot going on in my life, I mean I have 7 children.  There are many irons in many fires.  The anniversary of my Lady’s death is coming up, my house is in disarray because we are painting, my room is a nightmare because all my living room belongings are not upstairs, Hunter is not getting better, school, issues with a family member that is breaking my heart.

I have to step back.

It really is that simple.

Now, how to do that…

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Amish Iridologist

Reuben Schwartz Amish Iridologist

Reuben Schwartz Amish Iridologist

Reuben Schwartz Amish Iridologist

Here is a bit more information on Reuben Schwartz Amish Iridologist.  I had heard of him a long time ago.  In the busyness of life, I just let the knowledge slip my mind until my brother brought him back up.

This time, I did my homework.  I did some research and found great things about this man.  However, getting an appointment is not simple and takes time.  Patience is definitely a virtue.

At the point we saw Mr. Reuben, we had been on the Opsoclonus Myoclonus Syndrome journey for almost a year.  Sadly, he had been really bad a few months earlier.  He had been in a wheelchair from about April 2018 to June 2018.  That June, we had been to our first naturopathic doctor.

Eye-opening.

I will post more on this treatment in another post.  So, by the time we got to Mr. Reuben, he was out of the wheelchair but still tremulous.  Frankly, I was curious.  The things I read about him were pretty good.

My Experience

I will not write too much about Hunter’s because he is not old enough to tell me his thoughts.  However, I will say that 2 people, thousands of miles apart, one massively educated and wonderful…the other not educated and wonderful…said the same thing.

Getting an Appointment

In order to get an appointment, I wrote him a letter.  This is the only way to get an appointment and assure you can get in to actually see him.  You can “show up” but those that have appointments get first priority.  If you show up, you take the risk of not being seen.  He is a busy busy man.

If you are interested in getting an appointment, you can email me with questions about my experience.  My email is barefootfaithjourney@gmail.com.  Also, you can write to him (this is a public record) and request an appointment.

Address

Reuben Schwartz

1205 Radure Rd.

Hestand, KY  42151

Head’s Up

My GPS took me on down the driveway to the house at the end of the road.  That is his son, Abraham’s house.  Abraham is one of Reuben’s sons.  He is sweet…his family is pretty sweet, as well.  He told me that Reuben’s place is the first place, on the left.  It has a full-length front porch and the building is fairly new (compared to the other houses).  There is little to no cell signal once you get into Amish country.

Walking In

Pulling up and parking in the grass was my first moment to soak it all up.  We got out and there was a couple with several children sitting on the full-length front porch.  They have been going to Reuben for years, even before children.  Now, they come every year for a quick checkup.

We walked in and there were several people there, waiting.  See, you can just “show up” but first priority goes to those with appointments.  He has a predetermined amount of people he sees within a day, so keep that in mind.

Hunter explored and I took it all in while filling out Hunter’s paperwork.  I had no intention of him looking into my eyes.  Mr. Reuben came to the door and he is a thin, lanky man with a beautiful white beard.  His eyes were this piercing blue.  He smelled of Melaleuca and love.

Heading to the Office

I asked him how he came to do this.  He laughed and said that it had been a part of their community for as long as he could remember.  Also, he said that, when he was younger, he thought it was witchcraft and that he stayed far far away from it.

As he grew older and continuing to see this miraculous healing (he loves Jesus, by the way), he became intrigued and began studying the practice of Iridology.  Once he realized that history of it and the reality of how it was helping others, he dove right in.

Looking Into His Eyes

Now, he knew of Hunter’s diagnosis, though he had never heard of it.  Trying telling an Amish man to look up your Youtube channel.  LOL It was like a blank stare came across his face and you could hear crickets chirping.  He politely said he had never heard of the YouTube.  I laughed.  He laughed.

Once he looked into Hunter’s eyes, he said that he was riddled with parasites.  Realize I had just been to St. Augustine and the parasites were identified at that session, as well.  He said that he could see parasite scarring (where some had died) and then he saw active ones.

He smiled and said that my son was not going to die…we were going to get rid of the parasites.  With the herbs/supplements we got from him and the high/low-frequency acupuncture and bio-impedance we got from SonRidge, he will quit shaking.  I was in awe that both man, brilliant in their own rights, said the same thing.  Amazing.

Then It was Me

Once again, I took the bull by the … well … nevermind, I asked him to look into my eyes.  All he knew was my name.  The first thing he said was “when did you get your uterus out?”  I told him a year ago.  He said, “well, you still have your ovaries, right?”  I asked how he knew that and he simply said he sees it in my eyes.

Then, he put his crucible and little utility flashlight down and backed away from me.  He stared at me for a minute and he paused.  He said “Uhm, ma’am, your, Uhm, your ovaries…well, they are angry.  Do you have trouble sleeping, trouble with your moods, etc.?”  I said that I did and he told me he would fix that.

He then asked how long I have had dizzy spells (diagnosed with Meniere’s at 19 yr old), how long I had had high blood pressure, how my stress level was.  I mean he nailed me.  Everything.  I was blown away.

Herbs and Supplements

They are not cheap, but they last for a long while.  What they do not sell at the office, there is a little shop at the end of that road.  I can’t remember the name, but you pass it as you go up to Reuben’s.  They have the rest of what you might need.  Unlike Reuben’s, they do take a credit card and are super friendly.  They will tell you what you need and what you really don’t need or give you cheaper options.

Payment

Mr. Reuben is FREE.  He does have a donation box, in his office, if you feel led to donate any money for his time.  Also, herbs and supplements are not free.  They do not take cards, so bring cash, if you should choose to buy anything.

If you go back, you can take your empty bottle and they can fill that bottle back up.  They are big on recycling and the environment.  They also have some veggies/popcorn/jam and other things that they grow and sell in the office.

Disclosure

**I am in no way a doctor.  All I know about Iridology I have read/asked.  I am not telling you to go the route that we went with naturopathic doctors.  Also, I am not telling you to disregard your regular doctor, his advice, or stop taking your medications.  This is 100% my experience in my own body.  Also, it is my personal experience and knowledge with my son and his condition.  We still seek the care of our regular PCP and Neurologist.  Please seek out your doctor’s opinion, research yourself, and make an informed decision.  All opinions are my own.**

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On the Road Again

Here we go, back to the Amish Iridologist he is Looking Into My Eyes.  As we travel back to Hestand, KY, we meet up with Dr. Reuben Schwartz.  I’m so thankful that the trip is not too long, about 4 hours.  I had packed Hunter’s bag the night before.  We had the staples, of course.  I had a few pullups, wipes, a baggie, some extra clothes, 3 stuffed animals, a banana, some gluten-free snacks, and 2 movies.  I had told the kids to do their chores before bed, to prevent yuckiness in the morning.  It was also required, that they all bathe cause…well, they are kids and they smell.

Preparing

Once morning rolled around, kids ate quickly and got dressed.  We hoped in the van and once we were on the interstate, we popped in a movie.  Big Daddy drove, I slept, kids watched a movie.  It was a good set up.

Due to the MASSIVE amounts of road construction and the fact that Dr. Reuben is out in the middle of nowhere (quite literally), we were 15 minutes late.  They were waiting on us because it was inching closer to dinner time and they do not miss their dinner.

His son was there to help, so he took the boys to one room and I had Hunter and Grayce with me.  Mr. Reuben did his thing.  He got his little crucible and his utility flashlight and he edged all up in my personal space.  The man smells like Melaleuca and love, I kid you not.  His eyes are bright, his clothes are fantastic, and his white beard with those piercing blue eyes…..oh, and that smile.  He is so engaging and friendly (and honest).  It has been such a joy getting to know him.

The Results are In for the Kids

G:  He said her “rages” were because her left ovary was not very nice LOL.  He saw, in her eye, the issue she has had since before she came to us.  He even found her pneumonia that she had before she came to us.  Apparently, there is scarring from it.  Her thyroid is causing her weight to be out of control and stress.

N:  Stress, thyroid, adrenal gland, digestive system, and drink more water!

D:  Stress, digestive issues, and heart issues.  This is probably a biological factor, as Dr. Reuben’s son asked if we had heart issues.  We had to, quietly, explain our family dynamics.

J:  This boy.  Well, there is stress, digestive stuff, not enough water but he was told to “lay off the sodas.”  We laughed and said that he doesn’t drink anything but water and milk.  They see pre-diabetic stuff going on in him.  I had to have Dr. Reuben look at him because I told him Ethiopians do not have diabetes and he is only 12 and something wasn’t seen correctly.  Reuben saw the same thing, so we are going to be making a follow up with his pediatrician to check his blood work.  Mama is not even playing.

Big Daddy and Me

Big Daddy:  He asked him how his joints were (collective laughter as we all know how bad his knees are).  He asked him how his stress was, he nailed his thyroid, the fact that he does not drink enough water or that he eats too much red meat.  He also laid out the issue with his heart.

Me:  Once Dr. Reuben got all up in my stuff, he slid on back in his chair and said: “good grief, you are under tremendous stress.”  I told him I was fine and what made him think I was stressed.  He laughed and said, “your eye is telling me you are under stress.”  I told him of my past 2 weeks where every night, I have been consumed in pain.  I either start vomiting or have diarrhea.  He said that it was straight-up stress.  He said we needed to calm my body down.

Stress

I find it eye-opening that all my kids (and us) had stress show up in their eyes.  This past year has been nothing but a stress ball for us.  I don’t think I have considered the effects of Hunter’s condition has had on the children.

How sad, as a mom, I did not recognize that.  We are all going to have to sit down and have a family meeting to address this.  Our family may need to step back from the few things that we do, in order to see to the mental health of our crew.

I know that I have a lot going on in my life, I mean I have 7 children.  There are many irons in many fires.  The anniversary of my Lady’s death is coming up, my house is in disarray because we are painting, my room is a nightmare because all my living room belongings are not upstairs, Hunter is not getting better, school, issues with a family member that is breaking my heart.

I have to step back.

It really is that simple.

Now, how to do that…

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Mountain Air Herbs

 

 

Amish Iridologist

Iridology = Yes Please

Iridology = Yes, Please

Iridology = Yes Please:  Reuben Schwartz

Iridology = Yes Please!  Thought I was done with the “out of the box” thinking.

Think again!

When you tell a mama that your baby has a progressive degenerative genetic disorder, that you cannot explain, and there is nothing they can do.

Think again!

Our first “out of the box” care was in Florida.  I met a tremendous team led by a wonderful, Godly man.  He did things that I have *never* seen before and I was floored.

Because I am a woman of doubt, I had him do his “magic” on me.  He nailed everything.  He knew nothing about me but my name.

I can’t even.

Healing began for Hunter and for me that day.  Our minds and our bodies were going to be healing from the inside out.  This was going to happen DESPITE what conventional doctors have said.

Now, bear in mind, NEITHER of these men wanted us off our conventional meds.  In fact, that stressed how important it is to follow the instructions of our regular doctors in regards to our health.

That being said, if God chooses to heal us from the inside out…then we may not need those other meds.

If you are seriously interested in the treatment/care we received in Florida, please fill out the contact form.  Send that to me, along with, your questions and I will get back to you.

Just sayin’.

Now, 2 months later, and we jet off to a small Amish community in Kentucky.  There, I met Dr. Reuben Schwartz.  He is THE man to see.

The drive was lovely and I have an infinity for the Amish community.  My father in law worked with them, side by side.  He helped them.  They helped him.  The same story is true for my daddy.  He has dear friends that are a part of our local Amish community.

Once I got there, I went too far LOL.  I ended up at a farm (well, there are nothing but farms in Amish communities).  I pulled up and there was a man, in his garden.  He greeted me, so kindly.  I asked him where Dr. Schwartz was and he said that I passed his place at the bottom of the hill.  He also mentioned, he was one of his sons 🙂

We had a lovely chat about my kids and Hunter.  He shared with me that his wife had just had twins and that gave them 9 daughters.

9.  Daughters.

Let that sink in.

When I left, I asked him his name.  He smiled and said “Abe.”  I smiled and said my son’s middle name is Abraham.  I explained a bit of Hunter’s story.  He said his name was Abraham, as well.

One day, I will share my story on the promise God gave to me, through Abraham and how we chose that name to add to our son’s legacy.

Part 2:  Driving back down the hill

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Beads of Courage

A Quarter of a Century

Fetal Alcohol Spectrum Disorders