New beginnings.
They carry a quiet kind of hope—soft, steady, and full of promise. Today is the last day of June, and with it comes a shift. This is the final post I will write about our journey with Opsoclonus Myoclonus Syndrome (OMS). It’s not the end of the story, but it is the closing of a long and winding chapter—one that has shaped us in more ways than I can count.
Eight years ago, our lives were forever changed when my son was diagnosed with OMS. Everything I thought I knew about parenting, about faith, about strength—was redefined in those early days of chaos and uncertainty. We were thrown into a world of specialists, treatments, therapies, and questions with no easy answers. But through it all, one thing remained constant: God’s faithfulness.
There were moments I didn’t think I could keep going. Moments of fear so deep, it took my breath away. But my son—my precious warrior—kept fighting. And because he never gave up, neither did I.
Today, he is alive. That alone is a miracle and testimony to God’s mercy and power. He still has struggles, and we don’t know what his future holds. But we rest in this truth:
“For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you a future and a hope.”
—Jeremiah 29:11
We cling to that promise. God has a plan for my son—a plan far greater than anything we could imagine. And so we move forward with hope.
I pray that as you’ve read these posts, you’ve learned something new—not just about OMS, but about compassion. If you ever see a parent struggling with a child’s behavior, please pause before judging. You never know the battles being fought behind tired eyes and brave smiles. Offer grace. Show kindness. Pray for them.
I also pray you’ve seen my heart through this journey. God’s goodness broke and rebuilt my heart. A heart that never stopped hoping—even when the world said there was none.
“Let us hold unswervingly to the hope we profess, for He who promised is faithful.”
—Hebrews 10:23
My son is more than a diagnosis. He is a living, breathing miracle. A warrior. And one day, I believe his test will become a powerful TESTimony—pointing others straight to Jesus.
This is not the end. It’s just the beginning of something new. A new chapter filled with purpose, promise, and hope.
To God be the glory. Always.
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You don’t have to walk this journey alone. Hope starts here.
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