Faith Journey, Medical, Opsoclonus Myoclonus Syndrome

The Shaking Doesn’t Stop

The Shaking Doesn’t Stop

The Shaking Doesn’t Stop

The Second ER – Misdiagnosis #2

We made arrangements for the kids, packed bags, and headed 2.5 hours to Nashville. We arrived at Vanderbilt Children’s Hospital in the middle of the night. In the end, The Shaking Doesn’t Stop.

They admitted us briefly but said no MRI could be done until morning.

They ran bloodwork and later completed an MRI. I asked for a spinal tap or spinal MRI—they declined. “Not necessary,” they said.

While we waited, new symptoms began to show up. H stiffened his legs like a toy soldier. He shook all over. He couldn’t sit up without help.

The MRI showed nothing. We were told it was Acute Cerebellitis Ataxia, likely caused by a virus—even though he had never been sick.

“Is anyone among you sick? Let them call the elders of the church to pray over them…”
James 5:14a (NIV)

We were told we must have just not noticed when he was sick. I was stunned.

He is three.
A blind, deaf, mute would know when a three-year-old is sick.

We were told to return if he had a grand mal seizure or if we feared for his life.


Discharged – But Not Done

What I’ll never forget is how flippantly the doctors treated us—how dismissive they were. But what I will remember even more clearly is the nurse who looked me in the eyes and said:

“You don’t have to leave. I can’t believe they’re discharging you, given the state he’s in.”

We knew then—we needed to keep pushing.

“Let us not grow weary of doing good, for in due season we will reap, if we do not give up.”
Galatians 6:9 (ESV)


The Third ER – Misdiagnosis #3

Still unsettled, I packed up again and drove 3.5 hours to Louisville. I wanted one thing: confirmation.

If two doctors gave me the same diagnosis, I’d accept it and wait.

Big Daddy stayed home with the others. I was hopeful that this time, we’d get real answers.

But even when the world throws labels and shrugs its shoulders, a mother’s gut—and the Holy Spirit—won’t be quieted.


Heartbeat Moment: When the Shaking Begins

That June evening, I had watched H giggle and shout with joy at a ball game. One day later, I watched him crumble under the weight of something we couldn’t name. But in between the popcorn and the panic, I felt something deeper growing—a fire, a knowing.

We weren’t just walking through a medical crisis.

We were walking through holy ground.

And even when we didn’t know the name of what we were fighting,
God did.

“Before they call I will answer; while they are still speaking I will hear.”
Isaiah 65:24 (NIV)

💛 If you’re navigating life’s hard places and need a safe space to heal, grow, or just breathe—Circle of Hope Counseling Services is here for you.

We offer trauma-informed, faith-filled therapy for individuals, couples, and families.

📞 Reach out today to schedule your first session (KY residents only) or learn more: Circle of Hope Counseling Services.

You don’t have to walk this journey alone. Hope starts here.

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Circle of Hope Counseling Services, End the Stigma, Faith Journey

I Did My Best, and God Did the Rest

@circle of hope counseling services (4)

I Did My Best, and God Did the Rest

There’s a deep peace that comes with knowing we are not in this alone. We show up, we try, we give it everything we have—but at the end of the day, we are only human. And that’s okay because God fills in the gaps where we fall short. At the end of my life, I want to say “I did my best, and God did the rest.”

Some days, our best doesn’t feel like enough. We carry burdens too heavy, face challenges too big, and battle thoughts that tell us we should be doing more. But the truth is, God never asked us to handle it all on our own. He asks us to trust Him.

When you’ve given all you can—when you’ve prayed, fought, endured, and still feel like you’re running on empty—know that God is still working. He sees what you’ve done. He knows your heart. And He is carrying you the rest of the way.

Maybe today, you feel like you’re falling short. Maybe you’re exhausted from trying to hold everything together. Take a deep breath and release it to God. Let Him take what you can’t carry.

Your best is all He asks for—not perfection, not endless striving, not doing it all alone. Just your best. And He will take care of the rest.

So, trust. Rest in His grace. Know that He is working in ways you can’t yet see. You are not failing, you are not alone, and you are deeply loved.

Do your best, and let God do the rest. 💛

Reach Out

💛 If you’re navigating life’s hard places and need a safe space to heal, grow, or just breathe—Circle of Hope Counseling Services is here for you.

We offer trauma-informed, faith-filled therapy for individuals, couples, and families.

📞 Reach out today to schedule your first session (KY residents only) or learn more: Circle of Hope Counseling Services.

You don’t have to walk this journey alone. Hope starts here.

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Everything is Gonna be Okay

Everything is Gonna be Okay

everything is gonna be ok

Ya know, Everything is Gonna be Okay. Romans 8:26-28 (MSG) says “Meanwhile, the moment we get tired in the waiting, God’s Spirit is right alongside helping us along. If we don’t know how or what to pray, it doesn’t matter. He does our praying in and for us, making prayer out of our wordless sighs, our aching groans. He knows us far better than we know ourselves, knows our pregnant condition, and keeps us present before God. That’s why we can be so sure that every detail in our lives of love for God is worked into something good.”

There are days when I don’t feel like everything is going to be okay. I feel like my life is going to implode and my actions will explode. I have to stop and tell myself that the Lord is not setting up, on his Heavenly throne, eating popcorn and biting His nails wondering what is going to happen next. He already knows. He sees it all. Knows it all and has a perfect provision in mind for ALL things. Trust. It’s hard but it is necessary in our walk with Christ. If I didn’t trust Him, I’d be running down the road, naked, screaming at the top of my lungs. (That last statement comes from my aka mom and she would tell us that when we were children.)

💛 If you’re navigating life’s hard places and need a safe space to heal, grow, or just breathe—Circle of Hope Counseling Services is here for you.

We offer trauma-informed, faith-filled therapy for individuals, couples, and families.

📞 Reach out today to schedule your first session (KY residents only) or learn more: Circle of Hope Counseling Services.

You don’t have to walk this journey alone. Hope starts here.

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Adoption, Guest Blogger

Meet my Guest Blogger and Sister Tera

Meet my Guest Blogger and Sister Tera

Meet my Guest Blogger and Sister Tera

 

Do you ever step back and take a look at where the Lord has had your journey? Reflection is an amazing reminder of our sanctification process. Sanctification….the word I view with both dread and anticipation. It is God’s plan of growing us into the likeness of Christ. Sounds lofty, but what does it require? Sanctification requires stretching. I am not a fan of being stretched, but the Lord has stretched me over the last several years in ways that I would never have asked, but in ways that I would never trade.

Memories

Recently I took a look at the blog I kept during our adoption processes. We have six children, three of whom joined our family through adoption. These three were older when they joined our family and all came home with memories of their life in their home countries.

During the adoption process, my blogs consisted of all the typical thoughts and anxieties that a mother exhibits while waiting for her precious child to be in her arms. Nothing ever happened on my timetable. What was the Lord thinking? Didn’t He know that our child needed to be home? Also, didn’t He sense our pain in the waiting? Wait, didn’t He part the Red Sea? Wasn’t He capable of blasting through the Red Tape? I feel anxious typing all of that right now! So, as I re-read my entries I ran across this note that typifies what I pray the Lord has taught me and continues to teach me in my walk with Him. We were on our way home with our newest son.

Previous Blog Post

This week we have watched God’s hand guide every aspect of our journey. Lots of travel troubles, UGH. Through it all, when I would feel anxiety welling up in my heart, I would hear Him asking me, Do you trust me? Also, do you really mean all the things you say to everyone else? Do you trust me to work out circumstances according to My plan, not yours? Finally, do you recognize that you are not in control? Over and over, I know that He was and is telling me that in good or bad I must choose to trust that this journey is HIS.

This journey of my life is the one that He has planned and intended. I still get very anxious, wanting to control situations and people, but honestly….deep within my soul, I do trust Him. I may not like the plan, but I trust that He has it ALL worked out. I’m on a plane right now on our last leg home from bringing home our son. We are surprising the other kids with an early flight home.

Soon we will be the eight of us. Our sweet boy is sleeping peacefully. He fully trusts us as his parents. We know where he is going and we know what is in store on the other end of this plane ride.  There was a plan to bring him home. Everywhere we’ve led him, he has willingly gone with a smile on his face, handheld out to take ours. Fully trusting. May I be the same with my Heavenly Father who has the plan?

Encouraging Words

As your family journeys along in life, I ask you to trust Him with the plan. Recognize that He sees the view from above the plane. The full view. You only see out of your little window. How we react to our journey will show the world that we trust HIM and love HIM more than we trust and love our plan. Ask yourself what you desire more…the child to be added to your family, your children to be whole, relief from difficulties, or is your desire for a relationship with the ONE who made both you and your child?

Lean Into Him

Marriage. Parenting. Adoption. Life.  Complex, beautiful, hard.  Embrace the hard as God’s provision for your sanctification.  Growth is never easy. Cling to Him.

Isaiah 55:8-9 “The Lord says: ‘My thoughts and my ways are not like yours. Just as the heavens are higher than the earth, my thoughts and my ways are higher than yours.’ ”

 

Adoption, Guest Blogger

Guest Blogger Big Daddy on Adoption

Guest Blogger Big Daddy on Adoption

Guest Blogger Big Daddy on Adoption

This post was originally written in 2017.

Guest Blogger Big Daddy on Adoption and his thoughts. After having three biological children, we decided to enter the realm of adoption. We believed our quiver wasn’t complete, so the decision was easy. What we didn’t realize is that adoption is HARD. It doesn’t matter what kind of adoption it is. Whether through foster care, international adoption, or one of your relatives, adoption is not for the faint of heart.

Adoption is Rewarding

 

However, adoption is very rewarding. Knowing that you have taken life into your home that otherwise was not wanted or was being mistreated, abused, or neglected is an amazing miracle. God intended for children to be raised by their parents, but circumstances sometimes do not allow that to happen. That’s why we took the plunge to care for the orphans.

Our Wild Ride to Adoption

 

As for our journey, it has been a wild ride. We have had a lot of good days and plenty of bad ones. But so far, we have stayed the course. We have tried to instill Godly values in our children while teaching them honesty, integrity, responsibility, and character. Sometimes we think that we are not making much progress, but honestly, we believe if we are consistent with the kids, they will turn out fine. Each child is different. We have learned how to parent each child with different behaviors and personalities.

 

At first, I was resistant to adoption, but after I met the little girl my sister-in-law and her husband adopted from the Philipines, my heart melted. I saw the love shown and given to her and believed I could do the same. So we decided to do it.

Our First Experience

 

Our first experience with fostering to adoption started pretty good other than the fact that these children were brought to us, and we knew nothing about them. It was hard, especially with Shay, because she was non-verbal at two years old. She never did warm up to me very much. Tay, on the other hand, was very happy and always smiling. Also, they were very sick, and we could not get them well.

 

Then the day that nearly broke us into the world of fostering/adoption happened. The kids were suddenly taken away from us by the Cabinet. We had no idea….one minute, we are raising these kids, and the next minute they are gone. We were told the reason but truly believed the social worker lied about us in a court hearing that we were not present at. I was furious, and it crushed my wife. To this day, she still has the scars of them being taken from us. We had to believe that the Lord had different plans for those sweet children and us.

Never Again?

 

At that time, we told ourselves we would not go through a horrible experience like we just had but decided to give it another go around. We started fostering D and G in the spring of 2007. At first, it was really good, but we learned quickly how many of these children in the child services system could be damaged. To find out the kids you just took into your home were previously abused is a tough pill to swallow.

 

Having to raise children during an investigation of abuse and ensuing court proceedings is not the way it should be. But the kids were safe, and we did our best to cope with the behaviors stemming from their past. We finally adopted them about two and a half years later. Since then, we’ve run the gamut of ups and downs with them. Some days are good, and some days are bad, but in the end, they are loved, and hopefully, they will be able to overcome the terrible start they had in life.

International Adoption

 

Our subsequent adoption was a foray into international adoption. My wife had always dreamed of adopting from the county of Ethiopia. After I met my new nephew from Ethiopia, my sister-in-law’s second adopted child. I was ready to go to Africa. The process was a lot of paperwork and a lot of money. (Not sure why it costs so much to adopt a child who has no home or no one else wants). Within a few months, we had a referral and got a picture of our son. It was amazing how we could love someone so much whom we had never met.

 

The anticipation was unbearable. But soon after that, we could travel to Africa and meet our son. It was an experience like none other. We met our son and spent three or four days with him. We went to court and were granted the adoption. The hardest part was leaving him there. But we were told that it should only be about eight weeks before we could return and bring him home. Little did we know then that eight weeks would turn into 14 months.

Huge Mistake Made by Home Study Agency

 

Our home study agency made a huge mistake, and the US government told us we did not make enough money to bring him home. How ridiculous is that? It’s a shame that money, or the lack thereof, keeps so many people from adopting children that need good homes. When we found this out, we desperately tried everything we could to get clearance from USCIS but were flat-out denied two months later. My wife was crushed beyond all belief. From December 2010 to about November 2011, she was just a shell of a person.

 

Yes, she lived and breathed, but that was about it. She was vacant. And there was nothing I could do about it. I believed that there was no way God would allow us to travel 7000 miles to meet a boy and tell him he would be our son, then him not ever come home. Not necessarily for our sake but for his. He was an innocent child growing up in an orphanage with 50 or 60 other children like him. But God made way for us to get our clearance to bring him home, and in December 2011, we brought J to his forever home. We were made whole.

Here We Go Again

 

After we brought J home, we thought our quiver was full. But God had other plans for our family. In November of 2015, we had an opportunity to take in our great-nephew, H. His mother, our niece, had been in trouble with the law and could not take care of him. H had been living with a man who believed he was the father. He had troubles of his own and agreed for us to keep H for a while. We decided to file for emergency custody of H mainly for his safety at the time. The man he was living with turned out not to be the biological father, and we were granted temporary custody of H.

His Biological Mom

 

His mother got into even more trouble later and was facing a lot of time in prison. She made a tough yet mature decision to terminate her rights and allow us to adopt H. I can’t imagine how hard that was for her. I am very proud of her for sacrificing for her son. H invigorated our family with joy. He has so much energy and is very sweet and funny. However, in June, he was diagnosed with an extremely rare neurological disorder called Opsoclonus Myoclonus Syndrome. He has been through a lot, which has been tough on him and us. But we take it one day at a time and trust in God for healing and comfort.

Adoption is Tough

 

So those reading this and considering adopting do not have preconceived notions of lollipops and rainbows. Adoption is challenging and not for the faint of heart. But the rewards are unending. Giving a child a home and stability is a beautiful thing. Whether they know it or not, children crave structure, discipline, and a sense of worth.

 

That’s the beauty of adoption.