Let Us Marinate
Let Us Marinate on the picture. Open it up, enlarge it and just look. This canvas is a 16×20, and there is NO room left to put ANY type of bead. Beads of Courage is defined as “Every time a bead is given, courage is honored, suffering is alleviated, resilience is strengthened, and the experience of human caring is affirmed. Every Bead of Courage Program integrates the use of beads, the earliest art form known to humans, as visible, tangible symbols of human experiences that need and deserve to be expressed.”
This is my youngest son’s canvas of all of his beads. We kept them, for the longest time, on strings. The strings didn’t hold up, so we were able to get 2 beautifully hand-crafted wooden boxes that were overflowing. So, one day, I thought…let’s see what I can come up with. What I ignored was the WEIGHT of this thing. There is no way a nail can hold this thing up. We may have to prop it up or use 2 nails and a wire…it is heavy!
You will notice that there are different types of beads. Each bead is indicative of a procedure/therapy/accomplishment/etc. that the child has done. I will say, H did not earn any beads for the first 3 years of his disease. This was because BOC was a program for terminally ill children or children with cancer. I believe there was also, at his hospital, a cardiac program. When we moved hospitals, the requirements changed. Now, BOC includes those children/young adults with life-altering conditions. So, these are the beads he has earned in the last 2 years. Can you even imagine if we were to go back and get them for the first 3 years??!!
Oval Type Beads
Orange (too many to count)
Central Line (PICC), Broviac, Port, Midline, IJ, Pheresis Catheter Placement & Removal
Blue (too many to count)
Dark Green (0)
Dialysis, TPN, NPO
Gray (too many to count)
Dressing Change, Central Line, Osteotomy, Trach, Surgery Site, Others, & Skin Care
Glow in the Dark (2)
Magenta (too many to count)
Emergency, Unusual Occurrence, Seizure, Emergency Transportation
Light Blue (too many to count)
Eye Exam, Eye Drops, mouth Care related to Treatment
Glass Star (20)
Brown and Face Bead (2)
Hair Loss, Hair Growth
Isolation Precautions, Fever, Neutropenia
Purple (too many to count)
IV Infusions (One bead per day or initiation & Discontinuation)
White (too many to count)
Learning New Medications, Parent Education
Beige (too many to count)
Nutrition & Diet Transitions
Yellow (too many to count)
Overnight Stay in Hospital (one bead per day)
Black (too many to count)
Pokes, IV starts, blood draws, subq & IM injections, port access, suture placement.
Tortoise (too many to count)
Procedures include Cath lab, biopsy, LP, casting, scope, shunt tap, IR, wound care, EVD, joint injections, aspirations, and others.
Pink (too many to count)
Respiratory support, sedation, anesthesia, ventilator
Silver Star (14)
Suture Removal, Staple Removal
Light Green (too many to count)
Test, Scans, CT, MRI, X-Ray, EKG, EEG, PFT, PET, US, BE, UGI, Nucl. Meds, Others
Therapy, support staff visits (PT, OT, SLP), Others
Transfusions, Blood products, Pheresis
Aqua (a bunch)
Tube, Catheter Placement & Removal, NG, NJ, G-tube, Chest Tube, Foley, Drain, Others
Papa Beads (too many to count)
He got this from his Papa’s private collection. These beads are SO precious to me.
Handmade Glass Selection (68)
Acts of Courage, Treatment-related Milestones
Square Heart (3)
Admission or Transfer to Intensive Care Unit
BOC Signature Heart (2)
Completion of Treatment, Transfer to Adult Services
Ceramic Special Selection (50)
Independent self or parent giving infusions or injections, Following medication schedule, Special accomplishment, Recognition of Personal or Family Accomplishment
Medication Challenges, Taking, learning, self or parent giving infusion or injection, Mobility Challenges, lying flat, bed rest, crutches, splint, wheelchair, 1st walk after surgery, other.
Transfer units or facilities, long-distance travel for care, “upstream battle.”
Transplant Glass Selection (24)
Member’s Choice (15)
Discharge from hospital
Let it ALL Sink In
This child, who got sick on June 6, 2017, had WAY more procedures, pokes, traveling, transplants, and all than he has had in the last 2 years. This canvas is only the last 2 years of the 5 he has had since he has gotten sick.
He is fantastic, brilliant, strong, capable, and able, and now he is HEALED. I never thought I would say that word concerning H, but here we are saying it loud and proud for all to hear. God is good. I didn’t think He was good. Honestly, I wondered if He even existed sometimes. Yet, I had warriors all around us that held up my arms and faithfully prayed for my son. They were my faith when I had none.
My Theme Verse
Romans 4:18-21 Against all hope, Abraham in hope believed…Yet he did not waver through unbelief regarding the promise of God but was strengthened in his faith and gave glory to God, 21 being fully persuaded that God had the power to do what he had promised.
Take that OMS!