There’s something uniquely painful about being told a hundred different things, only to be left holding nothing solid. H’s journey has been filled with more questions than answers—and more misdiagnoses than I care to count. This is a small snippet of what it took to finally land on something we could name. But even more… Continue reading The Long Road to a Name
Tag: faith journey
When the Calm Breaks
We got to the Children’s Hospital ER, and I remember it clearly: that moment when the calm I’d carried suddenly started to fray. This is When the Calm Breaks. There’s a shift that happens when the staff’s pace picks up, and the attendings—not the interns—start circling. My mama gut was screaming. My outer shell, however,… Continue reading When the Calm Breaks
“Being Brave” — H’s Story in His Own Words
Some stories are best told in the words of the one who lived them. Here is “Being Brave” — H’s Story in His Own Words. It’s been almost eight years since the day H’s world changed—and ours along with it. So much of that journey has been shared through my perspective as his mom, advocate,… Continue reading “Being Brave” — H’s Story in His Own Words
Even When There Was No Reason for Hope
There’s something about this verse that stops me in my tracks. Even when there was no reason for hope… Abraham kept hoping. Why? Because God had said. I was told there was no hope in my son living, however, Even When There Was No Reason for Hope. This isn’t blind optimism. This isn’t wishful thinking.… Continue reading Even When There Was No Reason for Hope
The Shaking Doesn’t Stop
The Shaking Doesn’t Stop The Second ER – Misdiagnosis #2 We made arrangements for the kids, packed bags, and headed 2.5 hours to Nashville. We arrived at Vanderbilt Children’s Hospital in the middle of the night. In the end, The Shaking Doesn’t Stop. They admitted us briefly but said no MRI could be done until… Continue reading The Shaking Doesn’t Stop
Before the Shaking Began
A Sweet Night at the Ball Field On this day in 2017, Before the Shaking Began, I had been with my Lady, and I knew her family was coming into town. I wanted to give them time together, so I took all my kids to one of my son’s baseball games. It was a warm… Continue reading Before the Shaking Began
The Prophecy and The Call
The Prophecy and The Call In December, we found ourselves at church, preparing for worship. After several months of church hunting, we had settled on one that we had initially been hesitant to visit. We knew the pastor and his wife, along with a few families, but we hadn't been attending for long. It felt… Continue reading The Prophecy and The Call
Faith Through the Fog: Our Journey with OMS, Eight Years Later
Faith Through the Fog: Our Journey with OMS, Eight Years Later In the month of June, I’m leaning into something I’ve long put off—sharing more of our story, the unfiltered version. Eight years ago, our lives were flipped upside down when our youngest son was diagnosed with Opsoclonus Myoclonus Syndrome (OMS), a rare and often… Continue reading Faith Through the Fog: Our Journey with OMS, Eight Years Later
5 Unexpected Ways Starting Over Can Make Your Life Better
5 Unexpected Ways Starting Over Can Make Your Life Better Here are 5 Unexpected Ways Starting Over Can Make Your Life Better. After a rough start (and finish) to my day, I decided to just begin again. As I sat in my bed, crying, I felt the Lord impress upon me a simple but powerful truth: every… Continue reading 5 Unexpected Ways Starting Over Can Make Your Life Better
The Crimson Thread in Your Tapestry
The Crimson Thread in Your Tapestry The Crimson Thread in Your Tapestry Over the course of life, there are moments when a crimson thread weaves itself into the beautiful tapestry that is being created. This thread represents the trials and struggles that seek to disrupt joy and peace. 1 Peter 5:8 reminds us to stay… Continue reading The Crimson Thread in Your Tapestry
What Happens When Your Pitcher of Life Crashes
What Happens When Your Pitcher of Life Crashes Life is like a glass pitcher from the 1960s—meant to hold lemonade, sun tea, or even flowers. From the moment we are born, we have a purpose, just as a pitcher is meant to hold liquid. As we grow, we fill that pitcher with our dreams, aspirations,… Continue reading What Happens When Your Pitcher of Life Crashes
Be Kind to Your Mind
Be Kind to Your Mind We often hear the phrase be kind to others, but how often do we practice kindness toward ourselves—especially our minds? The way we think, the words we speak to ourselves, and the care we give our mental well-being all matter. Your mind deserves kindness, too. Life can be overwhelming, and… Continue reading Be Kind to Your Mind
Be a Warrior, Not a Worrier
Be a Warrior, Not a Worrier Worry has a way of creeping into our minds, filling us with doubt, fear, and endless "what ifs." It steals our joy, drains our energy, and keeps us stuck in cycles of anxiety. But what if, instead of being a worrier, you chose to be a warrior? A warrior… Continue reading Be a Warrior, Not a Worrier
Do Not Be Afraid
Do Not Be Afraid Fear has a way of creeping into our hearts, whispering doubts and worries that steal our peace. Life is unpredictable, and the unknown can feel overwhelming. But in John 14:27, Jesus gives us a promise: "Peace I leave with you; my peace I give you. I do not give to you… Continue reading Do Not Be Afraid
Facing Fear God is Bigger
Facing Fear: Remember, God Is Bigger What is your biggest fear right now? Maybe it’s the fear of failure, rejection, the unknown, or something deeply personal that keeps you awake at night. Fear has a way of creeping in, whispering lies that you are not strong enough, not capable enough, not enough. But here’s the… Continue reading Facing Fear God is Bigger
You are Enough
You Are Enough I know it feels like the world can be against you sometimes. The weight of others’ opinions, assumptions, and judgments can be exhausting. But hear me loud and clear: you are enough. You are worthy of love, respect, and all the good things life has to offer. You do not deserve to… Continue reading You are Enough
You Can Always Begin Again
No Matter How Hard the Past Is, You Can Always Begin Again Life has a way of throwing us into storms we never saw coming. Painful moments, regrets, and heartbreak can make us feel like we are stuck—trapped in a cycle of the past. But here’s the beautiful truth: no matter how hard the past… Continue reading You Can Always Begin Again
I Did My Best, and God Did the Rest
I Did My Best, and God Did the Rest There’s a deep peace that comes with knowing we are not in this alone. We show up, we try, we give it everything we have—but at the end of the day, we are only human. And that’s okay because God fills in the gaps where we… Continue reading I Did My Best, and God Did the Rest
Take a Deep Breath and Try All Over Again
Take a Deep Breath and Try All Over Again Some days don’t go as planned so you need to take a deep breath and tray all over again. You wake up with the best intentions, but life throws curveballs—stress, setbacks, exhaustion, or unexpected challenges. It’s easy to feel frustrated, defeated, or like you’re failing. But… Continue reading Take a Deep Breath and Try All Over Again
Focus On the Step In Front of You
Focus on the Step in Front of You When life feels overwhelming, it’s easy to get caught up in the big picture—the long journey ahead, the challenges still to come, the uncertainty of it all. But when you stand at the bottom of a staircase, you don’t climb it all at once. You take it… Continue reading Focus On the Step In Front of You
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