Guest Blogger, Medical Issues

Open Letter to A Brother Who Left This World Too Soon

Open Letter to A Brother Who Left This World Too Soon

In this Open Letter to A Brother Who Left This World Too Soon, my guest blogger remembers her brother who died of cancer 6 years ago.  What a thing for a family to go through.  The loss of a child, grandchild, brother, and friend.  He was a few days shy of turning 19 when he met Jesus face to face.

Lord, bless this family.  Bless them with peace and sweet memories as they navigate this difficult week as they remember this sweet boy.  Please give them the knowledge that he is healthy, happy, and hanging out with your Son, Jesus.  He is waiting for them to all be reunited, one day.

Open Letter to A Brother Who Left This World Too Soon

 

Dear Z,

It has almost been six years without you, and I don’t feel that it has gotten any easier. This is a wound time is taking forever to heal. I miss you so much, and naturally, I wish you were here with me. This is my least favorite time of year. I know you are watching over me and taking care of me.

I Wish You Could Answer Me

I’d give anything to have one final conversation with you or to give you one last hug. If I could go back and change things I would. I would have stayed by your side through it all. I think about that all the time. Does it make me a bad sister for leaving you there? I could have taken whatever our step-father threw at me, just to stay with you.

Missing All The Things

My mom told me a few years ago that you asked for me every day.  That you asked when I was coming back from dad’s. You know I like to take care of people.  I took care of you for the longest time. Honestly, I miss waking up at 3 in the morning to refill your feeding pump. I miss helping you walk around, even though you protested the entire time. For six years I have been waiting for you to appear in front of me.  Just to give me a chance to tell you my final goodbye.  To tell you I loved you just one more time.

It Hasn’t Happened so I’ll Keep Waiting

I think I can finally start to let go of the regret I’ve had for the past six years. It’s time. You know I love you more than words could ever describe. I know your biggest fear in death was being forgotten, but you are so unforgettable. You made an impact in everyone’s life. I will never forget you or the things you did for me.

You were one of my best friends. I promise you my kids will know what an amazing man you were. They will know how strong you were, and how hard you fought. They will know that you are my hero, and I aspire to be as strong and as brave as you were.

After Six Years, I Can Let You Go and Let You Rest in Peace

That doesn’t mean I will forget about you, It just means I don’t have to worry about you hating me for leaving. I know you loved me as much as I loved you. I know you weren’t upset about us leaving moms. I’m just upset she wouldn’t let you stay with us.

I am letting go of my regret because it wasn’t my fault you got sick. Honestly, I was a child and I know it wasn’t my responsibility to take care of you. I am moving on and trying to start the new year off right. Thankfully, I know you will be with me and watching over me every step of the way.

Love,

S

Related Posts:

Struggling with Depression and Anxiety at a Young Age

Blog Remodel in a New None Sucky 2021

Guest Blogger, Medical Issues

The Real Truth About Death and Grief

The Real Truth About Death and Grief

In The Real Truth About Death and Grief, my guest blogger goes through her emotions of losing her brother at a very young age.  The loss of a sibling is devastating to the other children, as well as, the parents.  It is unimaginable pain that lingers for so very long.

The Real Truth About Death and Grief

Dearest Z,

A kid my age who I knew from school came in, and he reminds me so much of you. He has something wrong with him medically and he walks just like you did when you got sick. I saw him, and that made a bad day worse. Seriously, I wanted to give him a big hug. Then, I wanted to crawl under the register and cry. I miss you so much, It has been five years, I can’t believe it. You deserve to be here bub. I believe that you would be married with a family now.  You would a good dad.

Honest Prayer

I prayed to God every night for years that it was me instead of you. Honestly, I prayed that I could take all your pain away. I wanted to make you better and I couldn’t. That seems to be a recurring theme in my life. I make jokes about you being dead, but that’s how I cope with you being gone.

I’m sorry we left you with mom. I’m sorry I didn’t stay with you for that last year. I would have gone through whatever Tim threw at me, just to be with you that last year. Mom told me about how you asked for me every day after your seizure, and that story hurts my heart. She told me all about how you thought you saw me running around the foot of your bed every night before you went to bed. I am sorry I wasn’t there for that. I wish I was actually there to be running around your bed.

Life isn’t the same without you. I miss your voice, hugs, and I miss you yelling at me when I tried to help you walk. Honestly, I just miss you, dude. You were a light to anyone who knew you, and I miss your presence.

Thankful

Today, I am thankful for the beginning of healing.  Honestly, awareness of where healing needs to happen and the knowledge of the route that needs to be taken in order to walk through the pain that leads to healing.

 

Related Posts

A Letter to Myself

The Dark Days

My Dearest Mother

Guest Blogger

The Things You Need to Know About Nana

The Things You Need to Know About Nana

The Things You Need to Know About Nana

In The Things You Need to Know About Nana, my guest blogger uses her words to convey the love she has for her grandmother.  They had a tight bond that this young girl misses, terribly.

Dearest Nana

The past six years of my life have been awful, and you not being here has made that even. You were my person, and you left me. I had to to deal with everything alone, and to be honest, I am sick of it. You were the glue that held the family together.  Once you died everything changed. I wish I could put into words how much I miss you. Honestly, I know it is selfish, but I would give anything for you to be here with me. I feel like with life would be a better if you were here. Sadly, I miss my best friend, the one person I knew I could count on. I miss the person who was brutally honest to me.

Wish we could lay in bed and watch one more scary movie together. Or, I wish I could sleep in the bed with you one more time. I wish I could hear more stories from your childhood, I always enjoyed those. Furthermore, I want to. hear you try to pronounce “Aluminum” one last time.  That was absolutely hilarious. I really took my time with you for granted.

I’m sorry I couldn’t heal you. I couldn’t make you feel better, I did everything I could. It’s important you know I did my best. I was young and I did the best I could. When you first got sick I prayed to God that you at least lived until I was Eleven. Two and a half months after my Eleventh birthday you died. That has haunted me since the day you died. I’m sorry. Losing you is one of the hardest things I have ever go through, and it’s a wound time will never heal.

Thankful

Today, I am thankful for my granny.  There has never been another person like her.  She loved so completely.  I miss her face, her hugs, and her love.  Granny knew everything.  I could come to her with anything and she would tell me what to do.  When I was in the wrong, she was quick to correct me.  Yes, I would cry and it would hurt my feelings, but in the end, she was right.  Geez… I miss her.

Related Posts

No Thanks to You Part 3

{No} Thanks to You Part 2

No Thanks to You

Foster to Adopt ~ International ~ Intrafamily Adoption

Becoming a CASA Worker

Becoming a CASA Worker

Becoming a CASA Worker

The above graphic on Becoming a CASA Worker might give you an idea of what one does.  This is a volunteer program, for the most part.  Social workers are tired.  They are overloaded with work and laws that really do nothing in the grand scheme of things.  It is sad.  I have known (and know) some amazing social workers.  Then, I have known some “out for blood” people that turns people away from this important work.  Social work is a thankless job.  Honestly, I have such respect for these men and women going in and trying to do their best to help these children.

CASA

A CASA worker, again, is a volunteer job.  When I was a worker, it was about 9 years ago.  We were waiting for Jude’s adoption to go through.  I needed something to feel like I’m doing something to help someone.

There was a lady that I answered to.  We had meetings and classes.  Also, I would go with her to court and observe to see how things were handled within the courtroom.  I have never been one to shy away from a courtroom.  They are actually peaceful to me.  It can be frustrating when you see something so clear and then another decision is made by the judge.  Once done with the classes and following my boss, I was sworn in, by the judge.  Then I was able to testify if needed.

What I Did

I was the voice of the child.  That is the whole point of being a CASA worker.  We advocate for the child.  Sometimes you take the stand and sometimes you don’t.  Each person has someone working for them and being their voice.  There are the attorney’s (for both parties and the who represents the state), guardian ad litem (represents the child as their attorney), social worker (works towards reunification and closely with the parent(s), R&C worker (the foster parent’s advocate), and a CASA worker (the child’s advocate).

It sounds intimidating but it really isn’t.

Yet, it is a responsibility that you have to take seriously.  You have to look the part, behave the part, and know your stuff.  There was a situation, where a certain social worker, who didn’t care for me, put me on the spot.  It is no great secret there is no love loss between us but I tried to remain civil.  She had a hard time with that and refused to take the stand.  In fact, she said I “knew it all” and that I would handle it.

Well.  He called me up to the stand.

Guess what?

I handled it in direct opposition that this worker wanted it handled.  This is not a sparring match between two people who can’t play well together.  Honestly, this is about the child(ren) and helping them keep their core family together if we can.

I Loved the Job

For real, I would have done this permanently had Jude not been with me.  When he came home, he was my 100% focus.  Maybe one day I will get back in the groove.  I’m sure things have changed in the last 8 years.  So, it is best that you call your local agency and find out what you need to do in order to be a CASA worker.  It is totally worth it.

Call to Action

We are not all called to adopt BUT we are all called to do something.  Is this something?  Shadow a worker and see if what they do fits into your idea of what a CASA worker does.  Seeing positive family reunifications is so rewarding.  There are other things that you will see that will hurt your heart, to the core.  Yet, we are placed in that position for a reason.  Spread the love of Jesus in all that you do.

If you have any questions, let me know!

Related Posts

Foster Care Awareness Month

 

Foster to Adopt ~ International ~ Intrafamily Adoption

Foster Care Awareness Month

Foster Care Awareness Month

Foster Care Awareness Month

May is National Foster Care Awareness Month.  Foster Care…scary words, huh?  It was for me and Big Daddy when we started this journey many many years ago.  I have so many thoughts going through my head when I even utter that phrase.

Foster Care.

When we began our journey, we went in SO naive.  I mean googly-eyed and just eager to “fix,” “save,” and “help.”  Oh, my goodness.  We learned, quickly, that that was not the case.

Please remember, this is OUR journey.  These are OUR feelings.  This is OUR story.  Your story will be different.  That’s the beauty of life and different perspectives.  I’m PRO foster care.  I just wish we were better prepared for what we went through.

Before I Begin

In the lakes area, where I live, the numbers are staggering.  Across the board, staggering.  Every child deserves a home.  Also, every child deserves a last name.  Every child deserves safety and their basic needs met.  Bless…every child deserves love and a chance.  Every.  Single.  Child.  Whether they are fresh from the womb or 40 years old…EVERYONE deserves a family.

My Feels are Feeling

We were so naive.  I think I mentioned that.  We were eager.  First, we had our PS-MAPP classes.  10 weeks, 3 hours a week, sitting through classes re-learning how to parent.  We were not completely welcomed.  Judged, if you will.  There were people there that were older, older couples, younger couples, singletons.  I remember looking across the room and this one couple flat out asked us what we were doing in that class. That we had no business being in there because we already “had” children.  It wasn’t fair for us to make available children when some people in this world “can’t biologically have” children.  Bear in mind, in this class, I was there by myself.  Big Daddy had to work and did one on one classes.  So, I fielded some of the hate all alone.

Punch in the Gut

That statement took the wind right out of my sails.  I have many friends who cannot “biologically” have children.  Some have remained “childless” from society’s perspective.  Yet…they are just as much a parent then I am.  They love, deeply.  Sacrifice for others whether that is for their stepchildren/nieces/nephews/cousins/god-children or animals.  It is beautiful to witness.  There is beauty to be found in the ashes.

I have friends who have chosen to adopt BEFORE they biologically had children.  That is how they wanted it all along.  Some women can easily conceive and then make the choice to “prevent” conception in a permanent manner.  Then, they regret “playing God” and move towards adoption.

However, you come to the cross in how your family is structured…it is YOUR journey.  Yours.  No one should judge another for having no children or 1000 kids.  It is simply none of your business.  Gracious.  There can be so much hate, judgment, and condemnation.

Ways You Can Help

Not everyone is called to adopt, but we are all called to do something!  Here are so many tangible ways to help a foster child(ren), foster family, adoptive family, or a child you see that may need a little extra love.

  • Pray.  For the child, their parents and bio family, the foster family and extended family, judges, attorneys, guardians, social workers, counselors.  Can you even imagine, going from the chaos of an unsafe home, the only home you know, and leaving with a stranger?  Then, being left with a stranger.  Sleeping in a strange bed with people that you don’t even know their names or where the light switch is.  I cannot even begin to imagine.
  • Respite.  Provide a weekend, afternoon, or just a drive for the foster family with this new child.  Respite is a paid position if you so desire, it is basically babysitting.  Believe me, everyone will welcome a short break.
  • Meal or Errands.  Provide a meal or errands for the foster/adoptive family.  Cook one for now, and have one extra ready for the freezer for later.  What a help.  Running errands helps to contain the chaos.  It is so hard to get out and about sometimes.  There are just moments when we need someone to run to the bank but due to a crisis, we just can’t get there.  Be the hands and feet of Jesus.

Other Ways To Help

  • Help Around the House.  Mow the yard.  Do a load of laundry.  Come clean while people nap.  Oh, if I had that…people to go to the doctor’s appointments with me.  I was wagging 5 kids, by myself.  I had no help.
  • Be a Non-Judgemental Ear.  I never had that either.  Just listen.  Listen to all the words, even if they are un-Scriptural.  Don’t try and fix it.  Just listen and love.  Pray.  Point to Christ.
  • See a Need.  Meet a Need.  No questions asked.
  • Volunteer at a Boys and Girls home.  Big Brothers Big Sisters.  Youth facilities.
  • Become a CASA worker.  Be the voice for the child.  Worth it.
  • Donate to Moses Basket or Bags of Love (these are specific to our area).  You can call your local DCBS office and find out who you can donate items to help children coming into care.
  • Love.  Be Jesus with skin on.  Be His hands and feet.

Tomorrow

I may share the story of our first placement.  It was a hard time, personally, during my life.  Then these children blew life into my life and I was renewed.  Only to be devastated a short time after.  I know what satan’s eyes look like.  Met him, in person.  Still struggle, after all these years.  Today is not that day that I want to revisit that pain.

Related Posts:

Tater Tot Casserole with Cheese

Traditional Pound Cake Recipe

 

Medical Issues

Fetal Alcohol Spectrum Disorders

Fetal Alcohol Spectrum Disorders
Fetal Alcohol Spectrum Disorders

Fetal alcohol spectrum disorders (FASDs) are a group of conditions that can occur in a person whose mother drank alcohol during pregnancy.

These effects can include physical problems and problems with behavior and learning.
Often, people with FASDs have a mix of these problems.

What are FASDs?

FASDs refer to a range of effects that can happen to a person whose mother drank alcohol during pregnancy. These conditions can affect each person in different ways and can range from mild to severe.

They can affect the mind or the body, or both. Because FASDs make up a group of disorders, people with FASDs can exhibit a wide range and mix of symptoms.
Fetal alcohol syndrome (FAS) is one condition among the full range of FASDs. A
baby born with FAS has a small head, weighs less than other babies, and has
distinctive facial features.

Some of the behavioral and intellectual disabilities of people with FASDs include:

Difficulty with learning or memory
Higher than normal level of activity (hyperactivity)
Difficulty with attention
Speech and language delays
Low IQ
Poor reasoning and judgment skills
People born with FASDs can also have problems with their organs, including the heart and kidneys.

What causes FASDs?

FASDs are caused by a woman’s drinking alcohol during pregnancy. Alcohol in the mother’s blood passes to the baby through the umbilical cord. When a woman drinks alcohol so does her baby. There is no known amount of alcohol that is safe to drink during pregnancy or when trying to get pregnant. All drinks that contain alcohol, including wine and beer, can harm an unborn baby. There is no safe time to drink alcohol during pregnancy.

Alcohol can harm a baby at any time during pregnancy. So, to prevent FASDs, a woman should not drink alcohol while she is pregnant, or even when she might get pregnant. This is because a woman could get pregnant and not know it for up to 4 to 6 weeks. In the United States, nearly half of all pregnancies are unplanned.

How many people have FASDs?

We do not know exactly how many people have an FASD. Few estimates are available. Based on community studies using physical examinations, experts estimate that the full range of FASDs among 6-7-year-old children in the United States and some Western European countries might be as high as 2 to 5 out of 100 school children (or 2% to 5% of
the population).

Are there treatments for FASDs?

FASDs last a lifetime. There is no cure for FASDs, but research shows that early intervention treatment services can improve a child’s development.
There are many types of treatment options, including medication to help with some symptoms, behavior and education therapy, parent training, and other approaches. No one treatment is right for every child.

Good treatment plans will include close monitoring, follow-ups, and changes as needed along the way.
There are a number of factors that can help reduce the effects of FASDs and help people with these conditions reach their full potential.

These factors include:

Diagnosis before 6 years of age
A loving, nurturing, and stable home environment during the school years
Absence of violence
Involvement in special education and social services

What can I do if I think my child has an FASD?

~Ask for a Referral.
If you or your health care provider thinks your child could have an FASD, ask your provider for a referral to a specialist (someone who knows about FASDs), such as a developmental pediatrician, child psychologist, or clinical geneticist. In some cities, there are clinics whose staff have special training in diagnosing and treating children with
FASDs.

For providers and clinics in your area, visit the National and State Resource Directory from the National Organization on Fetal Alcohol Syndrome (NOFAS)  or call 800–66–NOFAS (66327).
~Get an Evaluation
Call your state’s public early childhood system to request a free evaluation to find out if your child qualifies for intervention services. You do not need to wait for a health care provider’s referral or a medical diagnosis to make this call.

Steps for a free evaluation from the state depends on your child’s age:

For children younger than 3 years old, contact your local early intervention system. To learn more, call (973) 642-8100.
For children 3 years old or older, contact your local public school system.  Even if your child is not old enough for kindergarten or enrolled in a public school, call your local elementary school or board of education and ask to speak with someone who can help you have your child evaluated.

To help your child reach his or her full potential, it is very important to get help for FASDs as early as possible!

For More Information

To learn more about FASDs, visit Centers for Disease Control and Prevention or call 800–CDC–INFO
American Academy of Pediatrics FASD Toolkit 
Center for Parent Information and Resources call (973) 642-8100
National Organization on Fetal Alcohol Syndrome (NOFAS)  or call 800–66–NOFAS (66327)
Substance Abuse and Mental Health Services Administration’s FASD Center for Excellence

Related Posts:

So Many Decisions

 

Medical Issues

What is Reactive Attachment Disorder?

 What is Reactive Attachment Disorder?

What is Reactive Attachment Disorder?

What is Reactive Attachment Disorder?  RAD is a condition in which individuals have difficulty forming loving lasting
relationships.  Let me just tell you…this is HARD.  Seemingly, on the outside, things look great.  However, at home, it is like living in a nightmare.  Sadly, this is a nightmare that you do not wake up from.  Sometimes, it can be manageable.  For instance, medication for moods and sleep can help, sometimes.  However, their body starts building resistance to medications, so trial and error become the norm.

Some General Traits

Often have a nearly complete lack of ability to be genuinely affectionate with others.

Typically fail to develop a conscience and do not seem to trust.

Do not allow people to be in control of them due to this trust issue.

They can be surface compliant for weeks if there is no loving relationship involved.

However, with strangers, they can be extremely charming and appear loving.

Uneducated adults misinterpret this as the child trusting or caring for them. If they cannot trust and love their own family that loves them, they will not trust and love a casual acquaintance.

They do not think and feel like a normal person.

Some famous people with RAD

Hitler

Saddam Hussein

Edgar Alien Poe

Jeffrey Dahmer

Ted Bundy

Helen Keller

Isolated type, Predominant feeling is Sad

1. no friends
2. no touch
3. verbally compliant actually defiant

Evasive type, Predominant feeling is Fear

1. clingy
2. fake
3. charming
4. chatter
5. chameleon

Defiant type, Predominant feeling is Rage

1. cruel
2. charming
3. self-absorbed
4. destructive

Bizarre type

1. act crazy
2. constant noise

Causes

Any of the following conditions occurring to a child under 36 months of age puts a child at high risk for developing RAD:

~Maternal ambivalence toward pregnancy
~In-utero trauma, drugs, alcohol exposure
~Abuse
~Neglect
~Sudden separation from the primary caregiver
~Undiagnosed or painful illness such as colic or ear infections
~Inconsistent or inadequate daycare
~Chronic maternal depression
~Several moves and/or placements
~Unprepared mothers with poor parenting skills

Attachment Disorder Symptoms in Children

Superficially engaging & charming
Lack of eye contact on parents terms
Indiscriminately affectionate with strangers
Not affectionate on parents’ terms
Destructive to self, others, and material things (accident prone)
Cruelty to animals
Lying about the obvious (crazy lying)
Stealing
No impulse controls
Learning Lags
Lack of cause and effect thinking

More Issues

Lack of conscience
Abnormal eating patterns
Poor peer relationships
Preoccupation with fire
Preoccupation with blood & gore
Persistent nonsense questions & chatter
Inappropriately demanding & clingy
Abnormal speech patterns
Triangulation of adults
False allegations of abuse
Presumptive entitlement issues
Parents appear hostile and angry

Attachment Disorder Symptoms in Infants

~Does not use crying appropriately to get someone to address needs
~Often does not settle when needs are met by Mom
~Overreacts or often startles to touch, sound, and/or light
~Listlessness with no medical reason
~Limited holding onto or reaching for a caregiver
~Lack of appropriate stranger anxiety between 6 and 9 months of age
~Shows minimal interest in interacting with people
~Does not smile back or respond with activity to smites or baby talk
~Often does not follow human movement with their eyes
~Avoids eye contact
~Self abusive behavior
~Is resistant to cuddling

Great Quotes

When your brain works right, so can you. When your brain doesn’t work right, neither can you.” Daniel Amen, M.D.

“Experience changes the brain,” Bruce Perry, M.D,

Attachment is at the heart of all human endeavors.” Bruce Perry, M.D.

“Traditional therapy is useless for severely traumatized people, but especially children because it does not reach the parts of the brain that were most impacted by trauma.”  Bessel van der Kolk. M.D.

Complex (reactionary mind/brain stem) Survival mode

Fight – Defensive, tantrums argues, negative
Flight – Runs away, hypervigilant, stress-filled, anxious
Freeze- Shuts down emotions, shuts down learning, disassociates

Talking:

This is the first area that a child must gain self-control to begin the healing process.

Lies
Dumb questions
Unclear Speech
Jabbering
Swearing
Not answering
Why?
Arguing
I don’t know
Not accepting responsibility
Interrupting
Whining

Consequences vs. Punishment

Punishment turns thoughts to the outside of the child.

Consequences turn their thoughts inside.

Dramatic Displays:

Children need to be kept in close until they no longer need an audience to manipulate.

Flipping the bird
Overdramatic
Pity Parties
Fit Throwing
Aggression
Eye Rolling

Excretions:

It is essential that the child be 100% responsible for the clean-up of their own excretions after the age of five.

Urine
Feces
Flatulence
Vomit
Nasal Discharge
Spitting

Food Issues:

On one hand, you can’t make them eat it. On the other hand, you can’t make them stop eating either.  Sadly, they have to learn to control themselves. Honestly, a parent’s obligation as the nurturer is to provide nutritious meals three times a day.

Hiding food
Eating too much
Not eating
Picky eating
Eating rudely
Eating weird things

Friends and Family:

Relationships must begin between the mother and child.  Second, generalize to the father.  Third, to the family.  Fourth, to the community.  Lastly, to the world.

Peer relationships
Siblings rights
Abusing other kids
Setting up
Tattling
Pets

Prescribing the Problem:

When it’s not harmful to the child, pick your battles.  For instance, one avenue of intervention is prescribing the problem.

Chewing clothes
Chewing hands
Thumb sucking
Biting nails, lips, toes
Cracking knuckles
Picking boogers
Picking scabs
Masturbating
Crying wolf
Refusing medication
Nutrition
Allergies

Bedtime Issues:

Children need to sleep 10 to 12 hours a night with no light on. On the other hand, adults need to sleep 8 hours a night with no light on.

Setting alarm off
Not going to bed
Noise at night
Getting them up in the am and dressed

Restitution /Respite/Responsibility

~Restitution for stolen or intentionally stolen items should be double the replacement value of the item.

~It is the child’s responsibility to fill in the hole they dig with their inappropriate behaviors. The way they fill it in is by paying back with their time, their talent, or their energy.

~Stealing
~Running away
~Knives/weapons
~Destroying property
~Sabotaging fun
~Hygiene

From Others Toward Parents:

~Sometimes we have to say No

~No I won’t put my child in harm’s way by giving them freedoms they can’t handle.

~Parenting too tough, Nazis

~Not strict enough

~Munchhausen, Histrionic, Borderline, etc.

~Bad parent

~Don’t like/love child

~Scape-goating child

~Try harder

~Just love him more

Support Ideas

Realize this is a very painful situation. If you are on the Mom’s side, you are on the child’s side. Sadly, if you take the child’s side against the Mom, they both lose.

Equally important, listen with open ears and hearts. For instance, you should not judge, or be critical. Again, condemning, criticizing, or blaming Does Not Help to Lift the burden, don’t load it down.

Make short, loving phone calls (occasionally) to listen and encourage, not to advise, not to gather information, or “check on them”- Tell her she can chat whenever she needs an ear.

Finally, do Not give unasked-for advice.

Take all information as confidential.

It Is very helpful to educate yourself about Attachment Disorder.

**** Do not say just say ‘Let me know if I can help.’  Do something to help.****

Practical Ideas

1. Take her to lunch or dinner.
2. Rent a funny movie and share it.
3. Send her flowers, chocolate, or cards with love and a smile on it.
4. Bring her some dinner or baked goods,
5. Hugs are always heading. Moms need 12 a day minimum.
6. Pray for them.

More Ideas

Run errands to help lessen the load,
Take the kids somewhere for the afternoon. Be sure she knows it’s because she deserves a break and not because she can’t handle it.
Consider giving her a gift certificate for a massage, manicure, or hair salon.
Give her Mozart’s music or some other calming or uplifting tunes.
Give her a good book.
Buy her bubble bath and watch the kids for an hour or so white she soaks to music.
Remind her of her special traits and talents.
Tell the child often, in front of her, how lucky they are to have a mom like this.
Absolutely, never show up without calling to check for an appropriate time to visit.
Never tell her to “Just love the child more”. If you already have, beg forgiveness for not understanding.

Families by Design

Related Posts:

Reflecting on a Moment I Won’t Soon Forget

The Chair

Reflecting on 3 Month Post Diagnosis Stuff

Life or Something Like It, Medical Issues

Overwhelming Sadness

Overwhelming Sadness

 

Today (this being written on Saturday the 29th), I have overwhelming sadness.  There is no particular reason why.  It has been a beautiful day but it has been a long day.  I have accomplished quite a bit, but still feel like I’ve done nothing.  Now, in the quiet of my room…I feel that pressure of sadness.  It is almost like a weighted blanket being laid across my chest.

The one year anniversary of my Lady leaving me is today.

Fear of failure.

Frustration over accidents.

Anger in regards to businesses and their lack of care for their customers.

Sadness as I think of my niece and nephew.

Hurt as I think of what my sister has to deal with on a daily basis.

Listening to a friend, mourn knowledge of what has been.

Pain thinking of the things that little eyes have seen and little ears have heard.

Uncertainty when I look at my son.

So Many Emotions

Since I’ve been off my anti-depressants, I feel things.  I feel ALL the things.  This is not pleasant for me.  I’m certainly not familiar with these emotions and the random times they pop up.

I miss my friend.  It really is that simple.

Lately, I have stepped out of myself and I’ve allowed myself to talk about these things (all the things) to my husband.  Bless his heart.  He is so good.

He simply doesn’t know what to do with all that encompasses me and these things that I feel.  When I say I’m fixing to cry, he sits down and lets me sit on his lap and cry.  It doesn’t take long and once I’m done, I’m done.

He’s a good man.

God is Bigger

For now, I will lean on the knowledge that God is bigger.  He is big enough to handle all these stressors, mean people, stupid mistakes, and health issues.  I have to realize that, in Him, he sees the beauty in me.  He captures all my tears and he places them in a bottle.

He is good.  All the time and all the time He is good.

Related Posts:

The Prophecy and the Call

 

Foster to Adopt ~ International ~ Intrafamily Adoption, Medical Issues

Confabulation The “True” Story

Confabulation The "True" Story

Confabulation The “True” Story

 

In Confabulation The “True” Story according to Merriam-Webster Dictionary,

CONFABULATION means

1to talk informally 
2to hold a discussion 
>>>>>>3to fill in gaps in memory by fabrication<<<<<<<

A major characteristic of brain-damaged patients is the tendency to confabulate—to hide and dissemble about their damage.  —Peter R. Breggin

Now, I have stumbled upon another site called FASD FAMILIES.  Though it is geared more towards younger FASD kids, it has a ton of useful information.  One has to realize that, say there is a kid who is 16 years old, physically.  On a good day, they are developmental, emotionally, or mentally 8 yrs old.  When they are escalated, you are dealing with a 4-year-old.

No-Fault of the Child

This is at no fault to the child but to the situation of why they have FASD.  Fetal Alcohol Syndrome causes prenatal brain damage that they deal with for the rest of their lives.  The poor decision of a mother (or father), leads to a lifetime of struggles for their children.  This author defines confabulation, as well, and I thought it was PERFECT.

CONFABULATION: The fancy word is confabulation. Some would say it’s lying. I think it’s more like their version of the story becomes their truth because they don’t know the difference between truth and reality. Once they tell a story, they accept it as gospel.

^^^^^YES, HOLLA, PREACH IT, YOU GO, GIRL, ^^^^^

I have had a shit-tastic day with my oldest dd, 17.  Seriously, if it wasn’t one thing, it was 500 others.  The excuses flowed, the lies confabulations were on point and I fell for it.  I freaking fell for it.

These are the mistakes I made (in no particular order):
  • I asked a question, I knew the answer too.
  • I began escalating because she was escalated.
  • I’m not even in town to deal with it because I am in the hospital with another child.
  • I used too many words.
  • Other people were involved, though they were stepping in for an absent me not realizing they were jumping into quicksand.
  • We talked too long.

What an evil vicious cycle FASD is….or any of it!

FAS (Fetal Alcohol Syndrome)

FASD (Fetal Alcohol Spectrum Disorder)

PFAS (Partial Fetal Alcohol Syndrome)

ARND (Alcohol-Related Neurodevelopment Disorder)

ARBD (Alcohol-Related Birth Defects)

It is a horrific, invisible disease.

I feel as if I have failed as a parent because I cannot get through to these children, though we are the only family they remember.  That damn Amygdala brain (primitive brain that remembers in utero to 3 yr memories).  It is always there.

We have tried therapy, meds, regular dr visits, pastoral counseling, reading the Word, writing the Word, putting positive people in their lives, talking till I am blue in the face…nothing gets through.  Nothing.

Now, the big question is…

HOW DO I PARENT THAT WITHOUT LOSING MY MIND?

The quick answer is “I have no clue.”  The longer answer is “I REALLY have no clue.”

I guess it is time to not only continue to study about Opsoclonus Myoclonus Syndrome, in order to help Hunter…but to find the answers.

Related Posts

How to Heal a Fractured Family

The Things You Need to Know About Nana

Foster to Adopt ~ International ~ Intrafamily Adoption, Large Family Happenings

Content a 7 Letter Word

Content a 7 Letter Word

Content a 7 Letter Word

There is a word, I do not like so well.  Content a 7 Letter Word.  On October 14, 2015…..I remember sitting on the pot (yes, my revelations come in the bathroom) and contemplating life.  I have always yearned to have more children.  Big Daddy and I took that matter into our own hands and chose to “get him fixed” when Noah was about 2 maybe 3….at the time, he was 14.  I was looking up at a picture that my kids had made.  Each one had done their handprint in yellow and decorated it.  My frame was full….literally and figuratively.  We even traded in our suburban that, easily, fit 9 people for a smaller minivan.  Yep.  My life was complete.  Change is good with Content a 7 Letter Word.  Next up:  Grandchildren.
Been There, Done That with Adoption Avenues
Ethiopia was closing.  Foster system…..yep…..did that.  We couldn’t really afford any other type of adoption, so I just sat there, praising God for the children that I have and I uttered the words “Lord, I choose to be content.  I am content.  My kids are getting bigger.  I have more freedoms.  Life is good, and I’m thankful.”  I am thinking He was sitting on His heavenly throne, eating popcorn, and laughing hysterically at me.
The very next day.
THE.  VERY.  NEXT.  DAY.  Bart was home, and it was the tail end of fall break.  I was on cloud nine.  I felt like a thousand elephants had jumped off my chest and I was excited about letting go of a dream and moving forward.  In moving forward, we decided to throw caution to the wind and take 5 of our 6 kids to the movie.  Our oldest daughter was working.
Surprising our Kids with a Movie and Lunch
We were all getting dressed and almost out the door when the phone rang.  Normally, since most of us were in the van, I would ignore the phone and go on…I didn’t for some reason (or a God reason), and I looked at the caller ID, and it was my oldest sister.  A little mini back story about my sister and me.  We come from a very close-knit family, and when one of us is hurt or threatened, we surround that person and become a barrier of protection and love.
Yet…my sister and I were never really close.  She is close to my oldest brother, and I’m was super close to my sister 2 yrs older than me.  K is 6 yrs older, and my brother is 10 yrs older.  We loved each other….that has always held true, but that was about it.
A Little Backstory
About a year before this event, I had an appt with my number 6 child.  That trip took me close to where my sister worked.  I ran by there to say hi.  Also to get an update on her kids/grandkids.  Lastly, I wanted to give her an update on my family.  I suggested that we go to lunch together.  To get to know each other and to figure out who we are, as adults.  To my surprise, she said yes.
Faithfully, for a year, we met for lunch once a month.  It came to be a time that we both loved, and we didn’t want to miss it.  We started calling each other….texting each other….having jokes…solving the world’s problems.  I would now consider her one of my best friends.  My sisters are my strength, and they hold me up with love, consistency, prayers, devotion, honesty, and fussing at me when I need it.  When we told our other sister what all had transpired between us, she just cried.  She said that is what she had been praying about for years.
Always Answer Your Phone
So when I saw her name, I picked up the phone.  I knew she and her husband were out of town, so my first line was “what is wrong.”  I heard the panic in her voice…..she kept saying “can you go and get the babies.  Go and get them.  Mom is out of town.  I’m out of town.  Daddy is with them but can you get them.”  Uhm…..YES, I can.  We all loaded up and headed to town and when we pulled up tears and chaos surrounded us.  I will not go into detail because first, I do not have my sister’s permission….second, it is her and the babies’ stories….not mine to share.
Adding 2 Kids for the Weekend
We kept the babies that weekend (by babies they were 5 and 2), and she picked them up on Sunday.  I remember thinking “God, I have helped the least of these…may You bless them and protect them during this journey they are walking on.”  Then, I went to bed cause I was tired LOL.  I have not had a little one here since Daniel, and he was 2 1/2 when he moved in.  Jude was 5 when he came home.  To thrust me into little people’s clothes and diapers…..no thank you…I am good LOL.
Oops, We Missed One
Fast forward just a little bit to November 2015.  See….K and J had a little brother, Hunter.  He was living with, whom we thought was his father, but in reality, he was not.  His mom, my niece, was living in the streets wheeling and dealing and drugging.  Broke our hearts.  My heart broke for this little dude.  I knew my sister and her husband were working full time and had a toddler and a 5 yr old who are both dealing with PTSD and severe trauma from their beginnings.  Could she take on a baby who was 21 mths old?  Yep….would she go bald and run down the road naked screaming at the top of her lungs?  Yep.
Yielding
I talked to Big Daddy, my kids.  Also, I spoke to my other sister and my mama.  Then, and only then, did I talked to Kim.  One of the rawest, difficult, blessed events that have occurred between us.  We cried.  She agreed.  Niece agreed.  Judge agreed.
What On Earth Am I Thinking
So here I am, just turning 43 yrs old.  One out of the house, one almost in college, one in high school, one in middle school, two in grade school, and a baby…..a baby who wasn’t rocked that often.  My life consisted of standing in the baby aisle crying because I didn’t know what he needed.  Sippy cups.  Diapers.  Baby toys.  Diaper bags.  Smooshed up foods.  Car seats.  My van didn’t accommodate everyone.  Oh.  My.  Stars.  What have I freaking done!  I have a BABY!
So Much More to this Inter-Family Adoption
There is SO much more to this story.  Sadly, there is still so much fighting and many days in court.  There have been many tears.  So many “thank yous” from my sister and her husband.  Also, so much therapy and so many hospitals stay.  So.  Very.  Much.  You can read, from my sister’s perspective here on her blog Mom By Proxy….and God’s Grace.  We “officially” adopted him right before Christmas, last year.

 

Through It All…His Eyes Were On You

Through it all…..God knew what He was doing since before He created the Earth.  He knew how my family would be shaped.  That my relationship with my sister would be healed.  Also, He knew that I would be in my 40s still raising babies.

Straight Up Joy

This boy……..this baby………he has bound my crew together.  He has changed one of my daughters.  My little dude has his biggest brother wrapped around his little finger.  He is loved so deeply and completely.  His laugh, smile, and “I love you, mom.”  The fact that he says “daddy you are my favorite.”  Also, “Mamaw is my girlfriend.”  His imagination, drive, and determination are to behold.

He is my joy, the calm in the storm.  That little dude is my baby and he melts me.  Am I finished with babies?  I don’t know.  Grandkids are in my future…one day….but so may a little one who needs a family.  We shall see what God wants.  Till then, I will NEVER utter the phrase again “Lord, I am content.”  I will never use Content a 7 Letter Word again.